Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders.
The goal of this study was to examine caregiver agreement to hear about local research opportunities by joining a clinical research registry. Data from this cross-sectional study were gathered, between 2014 and 2017, across two outpatient clinics: (1) a multidisciplinary Autism Spectrum Disorder (AS...
| Publicado en: | Journal of Autism & Developmental Disorders Vol. 49; no. 9; pp. 3786 - 3798 |
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| Autores principales: | , , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Springer Nature
Sep2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=137793227&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 137793227 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 01623257 AUT jtl: Journal of Autism & Developmental Disorders issn: 01623257 maglogo: N pubinfo: dt: Sep2019 vid: 49 iid: 9 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 137793227 137793227 137793227 10.1007/s10803-019-04088-9 137793227 ppf: 3786 ppct: 12 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders. aug: au: Kalb, L. Jacobson, L. Zisman, C. Mahone, E. Landa, R. Azad, G. Menon, D. Singh, V. Zabel, A. Pritchard, A. affil: Department of Neuropsychology, Kennedy Krieger Institute, 1750 E. Fairmount Ave, 21231, Baltimore, MD, USA sug: subj: Caregivers Research Subjects Psychosocial Factors Consent (Research) Human Research, Medical Autism Spectrum Disorder Mental Disorders Race Factors Socioeconomic Factors Parents of Children with Disabilities ab: The goal of this study was to examine caregiver agreement to hear about local research opportunities by joining a clinical research registry. Data from this cross-sectional study were gathered, between 2014 and 2017, across two outpatient clinics: (1) a multidisciplinary Autism Spectrum Disorder (ASD) clinic (N = 5228) and (2) a general psychology clinic serving youth with, or at risk for, a neurodevelopmental disorder (NDD; N = 5040). Overall, more than 8 in 10 caregivers agreed to join the registry. Several child clinical characteristics, as well as racial and sociodemographic factors, were predictive of parental agreement. Findings suggest caregivers of youth with ASD and NDD are amenable to joining the local research enterprise, however further work is needed to understand why some caregivers decline. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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