Developing culturally informed genetic services for the Somali immigrants in Minnesota.
Misinformation and distrust often prevent individuals from minority communities to seek adequate healthcare, including genetic services. Immigrants appear to be further burdened by factors that negatively impact their health outcomes and little is known about their experience with genetic services....
| Publicado en: | Journal of Genetic Counseling Vol. 28; no. 4; pp. 887 - 897 |
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| Autores principales: | , , , , , |
| Formato: | research Journal Article |
| Publicado: |
Wiley-Blackwell
Aug2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=137888673&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 137888673 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10597700 41A jtl: Journal of Genetic Counseling issn: 10597700 maglogo: N pubinfo: dt: Aug2019 vid: 28 iid: 4 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 137888673 137888673 137888673 10.1002/jgc4.1131 137888673 ppf: 887 ppct: 10 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Developing culturally informed genetic services for the Somali immigrants in Minnesota. aug: au: Cheung, Fook Yee Pratt, Rebekah Shire, Abdirashid Bigalke, Lauren Ahmed, Zahra Zierhut, Heather affil: Department of Genetics, Cell Biology, and Development, University of Minnesota, Minneapolis Minnesota sug: subj: Genetic Counseling Minnesota Cultural Competence Psychosocial Factors Immigrants Somalia Patient Attitudes Perception Attitude to Health Patient Care Methods Human Program Development Minority Groups Communication Health Services Accessibility Health Status Psychosocial Factors Qualitative Studies Semi-Structured Interview Thematic Analysis Religion and Religions Cultural Values Conflict of Interest Health Care Delivery Prenatal Care Health Screening Pharmacogenetics Somalia Minnesota ab: Misinformation and distrust often prevent individuals from minority communities to seek adequate healthcare, including genetic services. Immigrants appear to be further burdened by factors that negatively impact their health outcomes and little is known about their experience with genetic services. We sought to identify attitudes and perception of genetic services in one immigrant group, the Somali community of Minnesota and to establish a culturally informed framework for caring for members. A qualitative study comprised of 11 semi‐structured key informant interviews was conducted and analyzed using a thematic approach. Main themes emerged from the analysis fell within one of four major topics: (a) Somali views and perspective on genetics and healthcare, (b) barriers to uptake of genetic services, (c) facilitators to uptake of genetic services, and (d) perspective on genetic service delivery subtypes. Somali views and perspective on genetics are often framed by religious and cultural values. These values, at times, conflicted with those common in the American healthcare system. Supports for different genetic service delivery subtypes also varied, ranging from little to no support in prenatal screening to generally positive support for pharmacogenetic testing. Future studies should prioritize topics with support and ways to better provide genetic counseling services within the Somali community. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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