An exploration of care‐burden experienced by older caregivers of adults with intellectual disabilities in Ireland.

Accessible summary: ·Older family carers of an adult with an Intellectual disability were asked about how they sometimes feel when supporting another person.·Most carers felt a little stressed or strained.·Older carers felt less stressed than younger carers.·The value of supports that help carers wa...

Full description

Bibliographic Details
Published in:British Journal of Learning Disabilities Vol. 47; no. 3; pp. 188 - 195
Main Authors: Egan, Caroline, Dalton, Caroline Teresa
Format: research tables/charts Journal Article
Published: Wiley-Blackwell Sep2019
Online Access:View this record in EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=137943671&site=ehost-live
header:
  @attributes:
    shortDbName: ccm
    uiTerm: 137943671
    longDbName: CINAHL Complete
    uiTag: AN
  controlInfo:
    bkinfo:
    dissinfo:
    jinfo:
      jid:
        13544187
        F04
      jtl: British Journal of Learning Disabilities
      issn: 13544187
      maglogo: Y
    pubinfo:
      dt: Sep2019
      vid: 47
      iid: 3
      pid: 480
      pub: Wiley-Blackwell
      place: Malden, Massachusetts
    artinfo:
      ui:
        137943671
        137943671
        137943671
        10.1111/bld.12273
        137943671
      ppf: 188
      ppct: 7
      formats:
        fmt:
          – @attributes:
              type: T
          – @attributes:
              type: P
      tig:
        atl: An exploration of care‐burden experienced by older caregivers of adults with intellectual disabilities in Ireland.
      aug:
        au:
          Egan, Caroline
          Dalton, Caroline Teresa
        affil: Catherine McAuley School of Nursing and Midwifery, University College Cork, National University of Ireland, Cork Ireland
      sug:
        subj:
          Intellectual Disability Therapy
          Caregiver Burden Risk Factors
          Risk Assessment
          Caregiver Attitudes Ireland
          Socioeconomic Factors
          Human
          Ireland
          Surveys
          Questionnaires
          Self Report
          Interviews
          Data Analysis Software
          Caregiver Support
          Middle Age
          Aged
          Aged, 80 and Over
          Middle Aged: 45-64 years
          Aged: 65+ years
          Aged, 80 & over
      ab: Accessible summary: ·Older family carers of an adult with an Intellectual disability were asked about how they sometimes feel when supporting another person.·Most carers felt a little stressed or strained.·Older carers felt less stressed than younger carers.·The value of supports that help carers was identified. Background: People with intellectual disabilities are experiencing increased longevity, and in parallel, their family caregivers are also ageing. The literature identifies that these caregivers are at risk of burden. The aim of this study was to measure the level of caregiver burden among older carers of adults with intellectual disabilities in an Irish sample and to analyse the effect of socio‐demographic factors upon experiences of caregiver burden. Materials and Methods: Thirty caregivers completed a survey questionnaire. Data were collected based upon participants' self‐reports of burden using the Zarit Burden Interview (ZBI) and a socio‐demographic questionnaire. Data were analysed using SPSS version 24. Results: Over 57% of carers indicated a mild‐to‐moderate level of burden. Analysis indicated that younger caregivers experience significantly higher levels of burden, when compared to older caregivers. Conclusions: This study contributes to our understanding of burden among an Irish population of older caregivers supporting an adult with an intellectual disability. It identified that carers do experience burden. The importance of proactive assessments and supports for these caregivers was revealed. This study highlights a lack of Irish research in this area and may pave the way for future research which could build upon its findings.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
    refInfo:
    holdings:
      @attributes:
        islocal: N