Pain in children with cerebral palsy – adolescent siblings' awareness of pain and perceived influence on their family.
Objective: To elucidate the experiences of being an adolescent sibling in a family that includes a child with cerebral palsy (CP) and pain, from the perspectives of siblings and parents. Methods: Seven siblings and 10 parents were individually interviewed to systematically analyse the experiences of...
| Publicado en: | European Journal of Physiotherapy Vol. 21; no. 3; pp. 164 - 171 |
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| Autores principales: | , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Sep2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=137944809&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 137944809 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 21679169 FSGO jtl: European Journal of Physiotherapy issn: 21679169 maglogo: N pubinfo: dt: Sep2019 vid: 21 iid: 3 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 137944809 137944809 137944809 10.1080/21679169.2018.1505946 137944809 ppf: 164 ppct: 7 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Pain in children with cerebral palsy – adolescent siblings' awareness of pain and perceived influence on their family. aug: au: Lostelius, Petra Vikman Ståhle-Öberg, Lena Fjellman-Wiklund, Anncristine affil: Department of Community Health and Rehabilitation, Physiotherapy, Umeå University, Umeå, Sweden sug: subj: Cerebral Palsy Complications Pain Psychosocial Factors Cerebral Palsy Psychosocial Factors Siblings Psychosocial Factors Family Attitudes Human Funding Source Parental Attitudes Adolescence Content Analysis Support, Psychosocial Emotions Physical Therapists Psychosocial Factors Qualitative Studies Interviews Sweden Thematic Analysis Coping Adolescent: 13-18 years ab: Objective: To elucidate the experiences of being an adolescent sibling in a family that includes a child with cerebral palsy (CP) and pain, from the perspectives of siblings and parents. Methods: Seven siblings and 10 parents were individually interviewed to systematically analyse the experiences of siblings and parents with children with CP and pain. The interviews were analysed by using qualitative content analysis according to Graneheim and Lundman. Results: The theme 'Making pain common ground for support' and three categories combined the non-disabled adolescent sibling and parental experiences of the child's pain, and point to the need for support of the non-disabled siblings. Dysfunctional coping influences the siblings' daily life and future health. Siblings wanted closer contact with the Development Centre in order to alleviate their negative emotions. Conclusions: As Development Centre physiotherapists meet the families to the child with CP, they can be a link to the sibling. Physiotherapists can educate siblings on pain and how to better cope with stress and emotional discomfort caused by their sibling's CP and pain. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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