"Paid to Endure": Paid Research Participation, Passivity, and the Goods of Work.
A growing literature documents the existence of individuals who make a living by participating in phase I clinical trials for money. Several scholars have noted that the concerns about risks, consent, and exploitation raised by this phenomenon apply to many (other) jobs, too, and therefore proposed...
| Publicado en: | American Journal of Bioethics Vol. 19; no. 9; pp. 11 - 21 |
|---|---|
| Autor principal: | |
| Formato: | review Journal Article |
| Publicado: |
Taylor & Francis Ltd
Sep2019
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=138105547&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 138105547 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 15265161 FKZ jtl: American Journal of Bioethics issn: 15265161 maglogo: N pubinfo: dt: Sep2019 vid: 19 iid: 9 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 138105547 138105547 138105547 10.1080/15265161.2019.1630498 138105547 ppf: 11 ppct: 10 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: "Paid to Endure": Paid Research Participation, Passivity, and the Goods of Work. aug: au: Malmqvist, Erik affil: University of Gothenburg sug: subj: Clinical Trials Research Subject Recruitment Economics Research Subjects Psychosocial Factors Income Adverse Health Care Event Risk Factors Consent (Research) Motivation Research Ethics Pharmaceutical Companies Government Regulations Philosophy ab: A growing literature documents the existence of individuals who make a living by participating in phase I clinical trials for money. Several scholars have noted that the concerns about risks, consent, and exploitation raised by this phenomenon apply to many (other) jobs, too, and therefore proposed improving subject protections by regulating phase I trial participation as work. This article contributes to the debate over this proposal by exploring a largely neglected worry. Unlike most (other) workers, subjects are not paid to produce or achieve anything but to have things done to them. I argue that this passivity is problematic for reasons of distributive justice. Specifically, it fails to enable subjects to realize what Gheaus and Herzog call "the goods of work"—a failure not offset by adequate opportunities to realize these goods outside of the research context. I also consider whether granting subjects worker-type protections would accommodate this concern. pubtype: Academic Journal doctype: review Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|