Gastroschisis at school age: what do parents report?
Children with gastroschisis are at high risk of morbidity in early life, which could affect long-term outcomes. We determined parent-reported outcomes in school-aged children born in 2000-2012, using paper questionnaires. Parent-perceived child vulnerability and motor function were compared with the...
| Publicado en: | European Journal of Pediatrics Vol. 178; no. 9; pp. 1405 - 1413 |
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| Autores principales: | , , , , , , |
| Formato: | Journal Article |
| Publicado: |
Springer Nature
Sep2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=138109850&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 138109850 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 03406199 CR1 jtl: European Journal of Pediatrics issn: 03406199 maglogo: N pubinfo: dt: Sep2019 vid: 178 iid: 9 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 138109850 138109850 144097699 NLM31325028 10.1007/s00431-019-03417-5 NLM31325028 138109850 ppf: 1405 ppct: 8 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Gastroschisis at school age: what do parents report? aug: au: Hijkoop, Annelieke Rietman, André B. Wijnen, René M. H. Tibboel, Dick Cohen-Overbeek, Titia E. van Rosmalen, Joost IJsselstijn, Hanneke affil: Department of Pediatric Surgery and Intensive Care, Erasmus MC–Sophia Children's Hospital, P.O. Box 2060, Room SP-3506, 3000, Rotterdam, CB, The Netherlands sug: subj: Gastroschisis Complications Gastroschisis Diagnosis Gastroschisis Psychosocial Factors Prognosis Prospective Studies Linear Regression Special Populations Cognition Quality of Life Parents Child Motor Skills Health Status Indicators Case Control Studies Adolescence Health Status Female Male Child Behavior Child Development Ferrans and Powers Quality of Life Index Questionnaires Scales Child: 6-12 years Adolescent: 13-18 years Female Male ab: Children with gastroschisis are at high risk of morbidity in early life, which could affect long-term outcomes. We determined parent-reported outcomes in school-aged children born in 2000-2012, using paper questionnaires. Parent-perceived child vulnerability and motor function were compared with the Dutch reference data; parent-rated data on cognition, health status, quality of life, and behavior were compared with those of controls matched for age, gender, and maternal education level. Of 77 eligible participants, 31 (40%) returned the questionnaires. Parent-reported motor function was normal in 23 (74%) children. Total scores on health status, quality of life, and behavior did not differ significantly from those of matched controls. Children with gastroschisis had lower scores on cognition (median (interquartile range); 109 (87-127)) than their matched controls (124 (113-140); p = 0.04). Neonatal intestinal failure and increased parent-perceived vulnerability were associated with lower scores on cognition (β - 25.66 (95% confidence interval - 49.41, - 1.91); - 2.76 (- 5.27, - 0.25), respectively).Conclusion: Parent-reported outcomes of school-aged children with gastroschisis were mainly reassuring. Clinicians and parents should be aware of the higher risk of cognitive problems, especially in those with neonatal intestinal failure or increased parent-perceived vulnerability. We recommend multidisciplinary follow-up at school age of children with gastroschisis and neonatal intestinal failure. What is Known: • Many infants with gastroschisis experience morbidity in early life. • Data on developmental outcomes and daily functioning in children with gastroschisis beyond the age of 5 years are scarce and conflicting. What is New: • Parents of school-aged children treated for gastroschisis report normal motor function, health status, quality of life, and behavior. • Children with gastroschisis, especially those with intestinal failure, may be at risk for cognitive problems at school age. Parents who reported their child as being more vulnerable also reported more cognitive problems at school age. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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