Evaluation of the scope, quality, and health literacy demand of Internet-based anal cancer information.
Objectives: As there is a dearth of information about anal cancer available at cancer centres, patients often use the Internet to search for information. This is problematic, however, because the quality of information on the Internet is variable, and the health literacy demanded is higher than the...
| Publicado en: | Journal of the Medical Library Association Vol. 107; no. 4; pp. 527 - 538 |
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| Autores principales: | , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
University of Pittsburgh, University Library System
Oct2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=138975495&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 138975495 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 15365050 PI8 jtl: Journal of the Medical Library Association issn: 15365050 maglogo: N pubinfo: dt: Oct2019 vid: 107 iid: 4 pid: 60406 pub: University of Pittsburgh, University Library System place: Pittsburgh, Pennsylvania artinfo: ui: 138975495 138975495 138975495 10.5195/jmla.2019.393 138975495 ppf: 527 ppct: 11 formats: fmt: @attributes: type: P tig: atl: Evaluation of the scope, quality, and health literacy demand of Internet-based anal cancer information. aug: au: Charow, Rebecca Snow, Michelle Fathima, Sameera Giuliani, Meredith E. McEwan, Kate Winegust, Jordana Papadakos, Janet affil: Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada sug: subj: Consumer Health Information Health Literacy Anus Neoplasms Support, Psychosocial Needs Assessment Internet Funding Source Human World Wide Web Descriptive Statistics Readability Questionnaires Scales Libraries, Health Sciences Patient Education ab: Objectives: As there is a dearth of information about anal cancer available at cancer centres, patients often use the Internet to search for information. This is problematic, however, because the quality of information on the Internet is variable, and the health literacy demanded is higher than the average patrons' capacity. The purposes of this study were to (1) determine the most common websites with anal cancer consumer health information, (2) identify the supportive care needs that each website addresses, and (3) evaluate the websites' quality and health literacy demand. Methods: Medical Subject Headings (MeSH) entry terms for "Anus Neoplasms" were used in Google Canada to identify websites. Seven domains of supportive care needs were defined using Fitch's Supportive Care Framework for Cancer Care. Website quality was evaluated using the DISCERN tool. Health literacy demand was assessed using readability calculators, where best practice dictates a grade 6 or lower, and the Patient Education Material Assessment Tool (PEMAT) that computes a percentage score in 2 domains, understandability and actionability, with 80% being an acceptable score. Results: Eighteen unique websites were evaluated. One website met health literacy best practices and had a "good" quality rating. Most websites addressed only 1 supportive care domain (61%), were of "fair" quality (67%), had readability scores higher than grade 6 (89%), and had PEMAT scores ranging from 41%-92% for understandability and 0-70% for actionability. Conclusion: The information gaps on anal cancer websites warrant a need for more health literate anal cancer health information on the Internet. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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