Partnerships for safe care: A meta‐narrative of the experience for the parent of a child with Intellectual Disability in hospital.
Objective: To systematically identify and synthesize peer‐reviewed qualitative evidence of the parental experience of hospitalization with a child with Intellectual Disability. Search strategy: Key words, synonyms and MeSH subject headings that related to the three key concepts of parental experienc...
| Publicado en: | Health Expectations Vol. 22; no. 6; pp. 1199 - 1213 |
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| Autores principales: | , , , |
| Formato: | research systematic review tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Dec2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=139900984&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 139900984 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Dec2019 vid: 22 iid: 6 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 139900984 139900984 139900984 10.1111/hex.12968 139900984 ppf: 1199 ppct: 14 formats: fmt: @attributes: type: P tig: atl: Partnerships for safe care: A meta‐narrative of the experience for the parent of a child with Intellectual Disability in hospital. aug: au: Mimmo, Laurel Woolfenden, Susan Travaglia, Joanne Harrison, Reema affil: Faculty of Medicine, School of Public Health and Community Medicine, University of New South Wales, Sydney New South Wales, Australia sug: subj: Parents of Children with Disabilities Psychosocial Factors Intellectual Disability In Infancy and Childhood Child, Hospitalized Human Medline CINAHL Database Embase Psycinfo Qualitative Studies Infant, Newborn Child Child, Preschool Adolescence Pediatric Nursing Parental Role Interpersonal Relations Patient Safety Systematic Review Infant, Newborn: birth-1 month Child: 6-12 years Child, Preschool: 2-5 years Adolescent: 13-18 years ab: Objective: To systematically identify and synthesize peer‐reviewed qualitative evidence of the parental experience of hospitalization with a child with Intellectual Disability. Search strategy: Key words, synonyms and MeSH subject headings that related to the three key concepts of parental experience, children with Intellectual Disability and hospital settings were applied to six electronic databases: Medline, CINAHL, Embase, PsycINFO, Scopus and Web of Science. Titles and abstracts of publications between January 2000 and February 2019 were screened for relevance. Inclusion criteria: Empirical qualitative research involved participants aged 0‐18 years, involved children with Intellectual Disability, involved participants hospitalized as an in‐patient and involved participants focused on parent perspective. Data extraction and synthesis: Data were extracted and synthesized using a meta‐narrative approach. Results: Eleven publications met the inclusion criteria. Data synthesis revealed three research traditions contributing to this meta‐narrative: Paediatric Nursing Practice, Intellectual Disability Healthcare and Patient Experience. A total of five themes were identified: (a) being more than a parent, (b) importance of role negotiation, (c) building trust and relationships, (d) the cumulative effect of previous experiences of hospitalization and (e) knowing the child as an individual. Discussion and conclusion: This review presents a working model for professional‐parent partnership for the safe care of children with Intellectual Disability in hospital. Shifting paediatric healthcare to whole of hospital/multidisciplinary models of care that centre on the child will necessitate partnerships with the parent to identify and manage the needs of the child with Intellectual Disability, in order to achieve safe and equitable care for these children. pubtype: Academic Journal doctype: research systematic review tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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