Caregivers' experiences with the new family‐centred paediatric physiotherapy programme COPCA: A qualitative study.
Background: Caregivers' experiences during early intervention of their infant with special needs have consequences for their participation in the intervention. Hence, it is vital to understand caregivers' view. This study explored caregivers' experiences with the family‐centred early intervention pr...
| Publicado en: | Child: Care, Health & Development Vol. 46; no. 1; pp. 28 - 37 |
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| Autores principales: | , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jan2020
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=141095065&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 141095065 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 03051862 6NX jtl: Child: Care, Health & Development issn: 03051862 maglogo: Y pubinfo: dt: Jan2020 vid: 46 iid: 1 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 141095065 141095065 141095065 10.1111/cch.12722 141095065 ppf: 28 ppct: 9 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Caregivers' experiences with the new family‐centred paediatric physiotherapy programme COPCA: A qualitative study. aug: au: Akhbari Ziegler, Schirin Mitteregger, Elena Hadders‐Algra, Mijna affil: School of Health Professions, Institute of Physiotherapy, Zurich University of Applied Sciences ZHAW, Winterthur Switzerland sug: subj: Caregiver Attitudes Family Centered Care Pediatric Physical Therapy Early Childhood Intervention Infant Development Disorders Rehabilitation Human Qualitative Studies Open-Ended Questionnaires Maternal Attitudes Interrater Reliability Content Analysis Program Evaluation ab: Background: Caregivers' experiences during early intervention of their infant with special needs have consequences for their participation in the intervention. Hence, it is vital to understand caregivers' view. This study explored caregivers' experiences with the family‐centred early intervention programme "COPing with and CAring for infants with special needs" (COPCA). Methods: The data of this qualitative study were collected after 6 months of COPCA intervention in 15 families with an infant with special needs. COPCA was delivered by paediatric physiotherapists in training to become COPCA coaches. Caregivers filled out a study‐specific questionnaire with three open‐ended questions addressing (a) their overall experience with COPCA, (b) what aspects of COPCA they had experienced as important, and (c) what they had learned during the intervention process. The answers were analysed using a content analyses approach. Results: Respondents were mothers. Interrater reliability of the content analyses of the three questions was twice excellent (κ =.95 and κ =.92) and once good (κ =.77). The content analysis of the first question resulted in four categories and three subcategories, for example, evaluation of COPCA as a form of intervention and benefit from COPCA. The content analyses of the second question resulted in eight categories, for example, home‐based intervention, support from the therapist, and the attainment of competences. The content analyses of the third question generated seven categories and four subcategories, for example, to support the infant autonomously at home and to recognize the competences of the infant, caregiver confidence, and relationship with the infant. Conclusions: The participating mothers appreciated the COPCA early intervention programme. They especially valued its home‐based setting, the support from the coach, and the experience being able to participate as active partners in the intervention make their own decisions. This means that the mothers valued the family‐centred, ecological, and relationship‐based elements of early intervention that currently are recommended. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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