Living with/out Dementia in Contemporary South Korea.
While the debate on diagnostic disclosure is often based on the premise that knowing about one's condition (the diagnosis and its prognosis) is essential in securing the patient's autonomy, many people with dementia in Korea are not told directly about their diagnosis. This article concerns the labo...
| Publicado en: | Medical Anthropology Quarterly Vol. 33; no. 4; pp. 501 - 517 |
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| Formato: | journal article |
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Wiley-Blackwell
Dec2019
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=141131600&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 141131600 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 07455194 GFS jtl: Medical Anthropology Quarterly issn: 07455194 maglogo: Y pubinfo: dt: Dec2019 vid: 33 iid: 4 pid: 480 pub: Wiley-Blackwell artinfo: ui: 141131600 10.1111/maq.12532 ppf: 501 ppct: 16 formats: fmt: – @attributes: type: T – @attributes: type: P size: 174KB tig: atl: Living with/out Dementia in Contemporary South Korea. aug: au: Lee, Jieun affil: Department of Anthropology, University of Copenhagen su: South Korea Elder care Old age Dementia Patient autonomy sug: subj: Elder care Old age South Korea Continuing Care Retirement Communities Dementia Patient autonomy keyword: bioethics care dementia diagnostic disclosure Korea bioethics care dementia diagnostic disclosure Korea ab: While the debate on diagnostic disclosure is often based on the premise that knowing about one's condition (the diagnosis and its prognosis) is essential in securing the patient's autonomy, many people with dementia in Korea are not told directly about their diagnosis. This article concerns the laborious and ethically contentious post-diagnostic living undertaken by the families of people with dementia, which I call "living with/out dementia." This is a paradoxical form of living that has emerged through the increasing biomedicalization of dementia, the socialization of elder care, and an enduring fear of dependency in old age. Attending to how living with/out dementia comes to be initiated and maintained through efforts of care, I argue that nondisclosure entails a kind of ethical process through which dementia is un/done in the caregivers' struggle to truthfully engage with the person with dementia while actively hiding the diagnostic truth from him or her. pubtype: Academic Journal doctype: journal article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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