Neurodevelopmental and health-related quality-of-life outcomes in adolescence after surgery for congenital heart disease in infancy.
Aim: To assess outcomes in adolescence after surgery for congenital heart disease (CHD) in infancy. Domains analysed included cognition and executive function, social and emotional well-being, adaptive behaviour, academic achievement, and health-related quality of life (HRQoL).Method: Twenty-one par...
| Publicado en: | Developmental Medicine & Child Neurology Vol. 62; no. 2; pp. 214 - 221 |
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| Autores principales: | , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Feb2020
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=141155602&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 141155602 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 00121622 1VN jtl: Developmental Medicine & Child Neurology issn: 00121622 maglogo: Y pubinfo: dt: Feb2020 vid: 62 iid: 2 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 141155602 141155602 NLM31025336 141155602 10.1111/dmcn.14251 NLM31025336 141155602 ppf: 214 ppct: 7 formats: tig: atl: Neurodevelopmental and health-related quality-of-life outcomes in adolescence after surgery for congenital heart disease in infancy. aug: au: Wotherspoon, Jane M Eagleson, Karen J Gilmore, Linda Auld, Benjamin Hirst, Anne Johnson, Susan Stocker, Christian Heussler, Helen Justo, Robert N affil: School of Psychology and Counselling, Queensland University of Technology, Brisbane Queensland, Australia sug: subj: Heart Defects, Congenital Surgery Heart Defects, Congenital Psychosocial Factors Female Heart Defects, Congenital Physiopathology Social Behavior Cognition Family Psychosocial Factors Human Postoperative Complications Physiopathology Treatment Outcomes Adaptation, Psychological Infant Prospective Studies Male Postoperative Complications Psychosocial Factors Adolescence Quality of Life Executive Function Severity of Illness Indices Neuropsychological Tests Questionnaires Language Tests Infant: 1-23 months Adolescent: 13-18 years Female Male ab: Aim: To assess outcomes in adolescence after surgery for congenital heart disease (CHD) in infancy. Domains analysed included cognition and executive function, social and emotional well-being, adaptive behaviour, academic achievement, and health-related quality of life (HRQoL).Method: Twenty-one participants (10 males, 11 females) ranged in age from 14 to 17 years (mean 15y 4.8mo, SD 8.4mo). Twenty had biventricular repairs. All were classified as New York Heart Association class I. Measures included: Wechsler Intelligence and Achievement scales; Wide Range Assessment of Memory and Learning, Second Edition; California Verbal Learning Test - Children's Version; Behaviour Rating Inventory of Executive Function; Conners, Third Edition; Adaptive Behavior Assessment System, Second Edition; Behavior Assessment System for Children, Second Edition; Rey-Osterrieth Complex Figure; and Pediatric Quality of Life Inventory.Results: Outcomes were significantly lower (p≤0.01) than population norms for processing speed, mathematical achievement, attention, and visual-spatial ability. Participants reported more frequent learning problems but more positive family relations. HRQoL was significantly lower across most domains by self- and parent-proxy report.Interpretation: Individuals with CHD may experience difficulties across a range of domains. These findings emphasize the importance of comprehensive screening, early intervention, and long-term follow-up, as deficits may extend into young adulthood.What This Paper Adds: Identified cognitive, learning, and attentional impairments in adolescents after congenital heart disease surgery in infancy. Combined self-report, caregiver report, and laboratory tasks in a comprehensive neurodevelopmental assessment protocol. Health-related quality of life was lower across most domains. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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