Outcome measurement instruments for peripheral vascular malformations and an assessment of the measurement properties: a systematic review.
Purpose: The Outcome measures for vascular malformation (OVAMA) group reached consensus on the core outcome domains for the core outcome set (COS) for peripheral vascular malformations (venous, lymphatic and arteriovenous malformations). However, it is unclear which instruments should be used to mea...
| Publicado en: | Quality of Life Research Vol. 29; no. 1; pp. 1 - 18 |
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| Autores principales: | , , , , , , , , , , , , , , |
| Formato: | research Journal Article |
| Publicado: |
Springer Nature
Jan2020
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=141210918&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 141210918 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09629343 GPQ jtl: Quality of Life Research issn: 09629343 maglogo: N pubinfo: dt: Jan2020 vid: 29 iid: 1 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 141210918 141210918 NLM31549367 141210918 10.1007/s11136-019-02301-x NLM31549367 141210918 ppf: 1 ppct: 17 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Outcome measurement instruments for peripheral vascular malformations and an assessment of the measurement properties: a systematic review. aug: au: Horbach, Sophie E. R. Rongen, Amber P. M. Elbers, Roy G. van der Horst, Chantal M. A. M. Prinsen, Cecilia A. C. Spuls, Phyllis I. Collaborators OVAMA consensus group Blei, F. van der Vleuten, C. J. M. Frieden, I. J. Richter, G. T. Tan, S. T. Muir, T. Penington, A. J. Boon, L. M. affil: Department of Plastic, Reconstructive and Hand Surgery, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands sug: subj: Vascular Malformations Epidemiology Prospective Studies Human Arthritis Impact Measurement Scales Ferrans and Powers Quality of Life Index ab: Purpose: The Outcome measures for vascular malformation (OVAMA) group reached consensus on the core outcome domains for the core outcome set (COS) for peripheral vascular malformations (venous, lymphatic and arteriovenous malformations). However, it is unclear which instruments should be used to measure these domains. Therefore, our aims were to identify all outcome measurement instruments available for vascular malformations, and to evaluate their measurement properties.Methods: With the first literature search, we identified outcomes and instruments previously used in prospective studies on vascular malformations. A second search yielded studies on measurement properties of patient- and physician-reported instruments that were either developed for vascular malformations, or used in prospective studies. If the latter instruments were not specifically validated for vascular malformations, we performed a third search for studies on measurement properties in clinically similar diseases (vascular or lymphatic diseases and benign tumors). We assessed the methodological quality of these studies following the Consensus-based Standards for the selection of health Measurement Instruments methodology, and evaluated the quality of the measurement properties.Results: The first search yielded 27 studies, none using disease-specific instruments. The second and third search included 22 development and/or validation studies, concerning six instruments. Only the Lymphatic Malformation Function Instrument was developed specifically for vascular malformations. Other instruments were generic QoL instruments developed and/or partly validated for clinically similar diseases.Conclusions: Additional research on measurement properties is needed to assess which instruments may be included in the COS. This review informs the instrument selection and/or the development of new instruments.Systematic Review Registration: PROSPERO, 42017056242. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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