Using the FOCUS Family Intervention for Family-Centered Care in a Premature Infant With Grade IV Intraventricular Hemorrhage.
Preterm infants face increased rates of mortality and developmental complications, which are a burden on children's parents (and caregivers), who suffer from exhaustion and situational uncertainty. This case focused on an extremely-low-birth-weight (908 gm) premature infant with initial unstable vit...
| Publicado en: | Journal of Nursing Vol. 67; no. 1; pp. 106 - 113 |
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| Autores principales: | , , |
| Formato: | case study tables/charts Journal Article |
| Publicado: |
Taiwan Nurses Association
Feb2020
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=141290169&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 141290169 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 31051049 H8H jtl: Journal of Nursing issn: 31051049 maglogo: N pubinfo: dt: Feb2020 vid: 67 iid: 1 pid: 12979 pub: Taiwan Nurses Association place: , <Blank> artinfo: ui: 141290169 141290169 141290169 10.6224/JN.202002_67(1).13 141290169 ppf: 106 ppct: 7 formats: fmt: @attributes: type: P tig: atl: Using the FOCUS Family Intervention for Family-Centered Care in a Premature Infant With Grade IV Intraventricular Hemorrhage. aug: au: Xuan-Yu QIU Guei-Ling FANN Hsiao-Ling YANG affil: BSN, RN, Department of Nursing, National Taiwan University Hospital sug: subj: Infant, Premature Cerebral Hemorrhage Family Centered Care Methods Professional-Family Relations Infant, Low Birth Weight Cerebral Hemorrhage Classification Cerebral Hemorrhage Complications Cerebral Ventricles Physiopathology Infant Care Psychosocial Factors Parents Stress, Psychological Cerebral Hemorrhage Therapy Decision Making Cerebral Hemorrhage Prognosis Emotions Coping Caregivers Quality of Life Homeostasis Infant Development ab: Preterm infants face increased rates of mortality and developmental complications, which are a burden on children's parents (and caregivers), who suffer from exhaustion and situational uncertainty. This case focused on an extremely-low-birth-weight (908 gm) premature infant with initial unstable vital signs complicated by a grade 4 intraventricular hemorrhage (IVH) that led to partial brain atrophy and enlarged brain ventricles. A poor neurological outcome was expected due to the high risk of cerebral palsy and impaired cognitive abilities. Long-term healthcare for this critical infant was causing tremendous physical, emotional, and financial strains on the family. The parents suffered from worries over the poor prognosis, resulting in stress, sleep disorders, and relationship difficulties with the healthcare professionals. Considering the poor prognosis of the infant, the parents faced a medical dilemma between choosing aggressive treatment and withdrawal of treatment, which led to stress and sleep disorders. Differences between the parents and health professionals regarding disease severity perception and treatment opinions further strained their mutual relationship. To ameliorate this issue, the author implemented family-centered care (the FOCUS family intervention) to help the patient and his family. This intervention is designed to increase family involvement, foster an optimistic attitude and effective stress coping techniques, and reduce uncertainty and negative emotions. For the patient, we provided symptom-relief management to improve abnormal muscle tone and development delay. Our intervention ameliorated the negative emotions, insomnia symptoms, and imbalanced family relationships and improved the life quality of the caregivers. Furthermore, the intervention enhanced the patient's autoregulatory ability, and both physical and neurological development. This case study is expected to provide experience in critical care for premature infants with a poor prognosis and their family using a FOCUS family intervention as well as to improve the quality of healthcare delivery in intensive clinical settings. pubtype: Academic Journal doctype: case study tables/charts Journal Article ougenre: Article language: Chinese refInfo: holdings: @attributes: islocal: N |
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