Using Participatory Design to Inform the Connected and Open Research Ethics (CORE) Commons.
Mobile health (mHealth) research involving pervasive sensors, mobile apps and other novel data collection tools and methods present new ethical, legal, and social challenges specific to informed consent, data management and bystander rights. To address these challenges, a participatory design approa...
| Published in: | Science & Engineering Ethics Vol. 26; no. 1; pp. 183 - 204 |
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| Main Authors: | , , , , , , , |
| Format: | Article |
| Published: |
Springer Nature
Feb2020
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| Subjects: | |
| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=hlh&AN=141385375&site=ehost-live header: @attributes: shortDbName: hlh uiTerm: 141385375 longDbName: Humanities International Complete uiTag: AN controlInfo: bkinfo: jinfo: jid: 13533452 GNI jtl: Science & Engineering Ethics issn: 13533452 maglogo: N pubinfo: dt: Feb2020 vid: 26 iid: 1 pid: 237 pub: Springer Nature artinfo: ui: 141385375 10.1007/s11948-019-00086-3 ppf: 183 ppct: 21 formats: fmt: – @attributes: type: T – @attributes: type: P size: 959KB tig: atl: Using Participatory Design to Inform the Connected and Open Research Ethics (CORE) Commons. aug: au: Harlow, John Weibel, Nadir Al Kotob, Rasheed Chan, Vincent Bloss, Cinnamon Linares-Orozco, Rubi Takemoto, Michelle Nebeker, Camille affil: School for the Future of Innovation in Society, Arizona State University, PO Box 875603, 85287-5603, Tempe, AZ, USA Department of Computer Science and Engineering, University of California San Diego, 9500 Gilman Dr #0404, 92093, La Jolla, CA, USA Department of Nano Engineering, University of California San Diego, 9500 Gilman Dr #0448, 92093, La Jolla, CA, USA Department of Family Medicine and Public Health, University of California San Diego, 9500 Gilman Dr #0811, 92093, La Jolla, CA, USA Office of Regulatory Compliance, University of California San Diego, 9500 Gilman Dr, 92093, La Jolla, CA, USA su: Participatory design Research ethics Library information networks Informed consent (Medical law) Mobile apps Concept mapping Physical fitness mobile apps sug: subj: Participatory design Research ethics Library information networks Informed consent (Medical law) Mobile apps Concept mapping Physical fitness mobile apps keyword: Digital medicine IRB mHealth Pervasive technology ab: Mobile health (mHealth) research involving pervasive sensors, mobile apps and other novel data collection tools and methods present new ethical, legal, and social challenges specific to informed consent, data management and bystander rights. To address these challenges, a participatory design approach was deployed whereby stakeholders contributed to the development of a web-based commons to support the mHealth research community including researchers and ethics board members. The CORE (Connected and Open Research Ethics) platform now features a community forum, a resource library and a network of nearly 600 global members. The utility of the participatory design process was evaluated by analyzing activities carried out over an 8-month design phase consisting of 86 distinct events including iterative design deliberations and social media engagement. This article describes how participatory design yielded 55 new features directly mapped to community needs and discusses relationships to user engagement as demonstrated by a steady increase in CORE member activity and followers on Twitter. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: Y custom: Science & Engineering Ethics is a copyright of Springer, 2020. All Rights Reserved. item: Science & Engineering Ethics holder: Springer Nature dt: @attributes: year: 2020 holdings: @attributes: islocal: N |
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