Capturing the patient voice: implementing patient-reported outcomes across the health system.
Purpose: Supporting the capture and use of patient-reported outcomes (PROs) at the point-of-care enriches information about important clinical and quality of life outcomes. Yet the ability to scale PROs across healthcare systems has been limited by knowledge gaps around how to manage the diversity o...
| Published in: | Quality of Life Research Vol. 29; no. 2; pp. 347 - 356 |
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| Main Authors: | , , , , |
| Format: | Journal Article |
| Published: |
Springer Nature
Feb2020
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=141513022&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 141513022 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09629343 GPQ jtl: Quality of Life Research issn: 09629343 maglogo: N pubinfo: dt: Feb2020 vid: 29 iid: 2 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 141513022 141513022 NLM31606809 10.1007/s11136-019-02320-8 NLM31606809 141513022 ppf: 347 ppct: 9 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Capturing the patient voice: implementing patient-reported outcomes across the health system. aug: au: Austin, Elizabeth LeRouge, Cynthia Hartzler, Andrea L. Segal, Courtney Lavallee, Danielle C. affil: Surgical Outcomes Research Center, University of Washington, Box 354808, 1107 NE 45th Street, Suite 502, 98105, Seattle, WA, USA sug: subj: Quality of Life Psychosocial Factors Health Care Delivery Standards Ferrans and Powers Quality of Life Index Scales Ways of Coping Questionnaire ab: Purpose: Supporting the capture and use of patient-reported outcomes (PROs) at the point-of-care enriches information about important clinical and quality of life outcomes. Yet the ability to scale PROs across healthcare systems has been limited by knowledge gaps around how to manage the diversity of PRO uses and leverage health information technology. In this study, we report learnings and practice insights from UW Medicine's practice transformation efforts to incorporate patient voice into multiple areas of care.Methods: Using a participatory, action research approach, we engaged with UW Medicine clinical and administrative stakeholders experienced with PRO implementation to inventory PRO implementations across the health system, characterize common clinical uses for PROs, and develop recommendations for system-wide governance and implementation of PROs.Results: We identified a wide breadth of PRO implementations (n = 14) in practice and found that nearly half (47%) of employed PRO measures captured shared clinical domains (e.g., depression). We developed three vignettes (use cases) that illustrate how users interact with PROs, characterize common ways PRO implementations support clinical care across the health system (1) Preventive care, (2) Chronic/Specialty care, and (3) Surgical/Interventional care), and elucidate opportunities to enhance efficient PRO implementations through system-level standards and governance.Conclusions: Practice transformation efforts increasingly require integration of the patient voice into clinical care, often through the use of PROs. Learnings from our work highlight the importance of proactively considering how PROs will be used across the layers of healthcare organizations to optimize the design and governance of PROs. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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