"Caregiving is a full‐time job" impacting stroke caregivers' health and well‐being: A qualitative meta‐synthesis.

Family caregivers contribute to the sustainability of healthcare systems. Stroke is a leading cause of adult disability and many people with stroke rely on caregiver support to return home and remain in the community. Research has demonstrated the importance of caregivers, but suggests that caregivi...

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Publicado en:Health & Social Care in the Community Vol. 28; no. 2; pp. 325 - 341
Autores principales: Kokorelias, Kristina M., Lu, Fiana K.T., Santos, Jennifer R., Xu, Yi, Leung, Robin, Cameron, Jill I.
Formato: research systematic review tables/charts meta synthesis Journal Article
Publicado: Wiley-Blackwell Mar2020
Acceso en línea:Ver este registro en EBSCOhost
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        10.1111/hsc.12895
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        atl: "Caregiving is a full‐time job" impacting stroke caregivers' health and well‐being: A qualitative meta‐synthesis.
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          Kokorelias, Kristina M.
          Lu, Fiana K.T.
          Santos, Jennifer R.
          Xu, Yi
          Leung, Robin
          Cameron, Jill I.
        affil: Faculty of Medicine, Rehabilitation Sciences Institute, University of Toronto, Toronto ON, Canada
      sug:
        subj:
          Employment Psychosocial Factors
          Caregivers Psychosocial Factors
          Stroke
          Health
          Psychological Well-Being
          Human
          Systematic Review
          Meta Synthesis
          Qualitative Studies
          CINAHL Database
          Medline
          Psycinfo
          Cochrane Library
      ab: Family caregivers contribute to the sustainability of healthcare systems. Stroke is a leading cause of adult disability and many people with stroke rely on caregiver support to return home and remain in the community. Research has demonstrated the importance of caregivers, but suggests that caregiving can have adverse consequences. Despite the body of qualitative stroke literature, there is little clarity about how to incorporate these findings into clinical practice. This review aimed to characterise stroke caregivers' experiences and the impact of these experiences on their health and well‐being. We conducted a qualitative meta‐synthesis. Four electronic databases were searched to identify original qualitative research examining stroke caregivers' experiences. In total, 4,481 citations were found, with 39 studies remaining after removing duplicates and applying inclusion and exclusions criteria. Articles were appraised for quality using the Critical Appraisal Skills Programme (CASP), coded using NVivo software, and analysed through thematic synthesis. One overarching theme, 'caregiving is a full‐time job' was identified, encompassing four sub‐themes: (a) restructured life, (b) altered relationships, (c) physical challenges, and (d) psychosocial challenges. Community and institution‐based clinicians should be aware of the physical and psychosocial consequences of caregiving and provide appropriate supports, such as education and respite, to optimise caregiver health and well‐being. Future research may build upon this study to identify caregivers in most need of support and the types of support needed across a broad range of health conditions.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        tables/charts
        meta synthesis
        Journal Article
      ougenre: Article
    language: English
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