Parents' experiences of services for their child with a life-limiting neurodevelopmental disability.
This study explored parents' experiences of services for children with life-limiting neurodevelopmental disabilities (LLNDD) using mixed methods. The study included a quantitative survey (n = 63) and qualitative interviews (n = 12), with a focus on integrating the findings to identify higher-level i...
| Publicado en: | Children's Health Care Vol. 49; no. 2; pp. 134 - 153 |
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| Autores principales: | , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Apr-Jun2020
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=142313242&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 142313242 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 02739615 7LJ jtl: Children's Health Care issn: 02739615 maglogo: N pubinfo: dt: Apr-Jun2020 vid: 49 iid: 2 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 142313242 142313242 142313242 10.1080/02739615.2019.1605608 142313242 ppf: 134 ppct: 19 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Parents' experiences of services for their child with a life-limiting neurodevelopmental disability. aug: au: Kiernan, Gemma Courtney, Eileen Ryan, Karen McQuillan, Regina Guerin, Suzanne affil: School of Nursing and Human Sciences, Dublin City University, Glasnevin, Dublin 9, Ireland sug: subj: Nervous System Diseases In Infancy and Childhood Developmental Disabilities Health Services Accessibility Parental Attitudes Evaluation Human Multimethod Studies Healthcare Disparities Geographic Factors Professional-Family Relations Attitude of Health Personnel Child Child: 6-12 years ab: This study explored parents' experiences of services for children with life-limiting neurodevelopmental disabilities (LLNDD) using mixed methods. The study included a quantitative survey (n = 63) and qualitative interviews (n = 12), with a focus on integrating the findings to identify higher-level insights. Results suggest parents' experiences are mixed, showing more negative than positive experiences. Access to services was described as problematic, with obstacles including funding and geographical inequities. Helpful aspects included staff attitudes and relationships and, to a lesser extent, coordinated care. Unhelpful aspects included inconsistencies in the provision of services. The findings suggest some implications for service provision, including the need for a more family-centered approach. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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