Exploring the perspectives of patients about their care experience: identifying what patients perceive are important qualities in cancer care.

Introduction: Delivering person-centered care begins with understanding perspectives of individuals who are recipients of care about their experiences and what constitutes a "positive" experience.Methods: This project explored views of individuals with cancer regarding their care experiences and ide...

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Publicado en:Supportive Care in Cancer Vol. 28; no. 5; pp. 2299 - 2310
Autores principales: Fitch, Margaret I., Coronado, Andrea C., Schippke, Julia C., Chadder, Jennifer, Green, Esther
Formato: Journal Article
Publicado: Springer Nature May2020
Acceso en línea:Ver este registro en EBSCOhost
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      pub: Springer Nature
      place: New York, New York
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        atl: Exploring the perspectives of patients about their care experience: identifying what patients perceive are important qualities in cancer care.
      aug:
        au:
          Fitch, Margaret I.
          Coronado, Andrea C.
          Schippke, Julia C.
          Chadder, Jennifer
          Green, Esther
        affil: Bloomberg Faculty of Nursing, University of Toronto, 207 Chisholm Ave., M4C 4V9, Toronto, Ontario, Canada
      sug:
        subj:
          Neoplasms Therapy
          Patient Satisfaction
          Neoplasms Psychosocial Factors
          Middle Age
          Adolescence
          Health Personnel
          Patient Centered Care Standards
          Young Adult
          Patients Psychosocial Factors
          Ambulatory Care Facilities Standards
          Adult
          Quality Improvement
          Canada
          Female
          Patient Centered Care Methods
          Communication
          Ferrans and Powers Quality of Life Index
          Personal Resource Questionnaire
          Middle Aged: 45-64 years
          Adolescent: 13-18 years
          Adult: 19-44 years
          Female
      ab: Introduction: Delivering person-centered care begins with understanding perspectives of individuals who are recipients of care about their experiences and what constitutes a "positive" experience.Methods: This project explored views of individuals with cancer regarding their care experiences and identified aspects of care patients thought were important through a qualitative analysis of data from the Ambulatory Oncology Patient Satisfaction Survey (AOPSS). Permission was obtained from seven Canadian provinces to access de-identified written comments to a final open-ended question on the survey: Is there anything else you would like to tell us about your cancer care experience? The descriptive qualitative analysis was guided by two questions: (1) what is the nature of the written comments and (2) what are key ideas expressed about care experiences? Key ideas were collated across provinces to identify significant themes within the national sample.Results: The sample included comments from 6232 individuals. A total of 42.5% comments were positive, 29.7% were negative, and 19.8% were mixed. Four broad themes were identified from the comments: (1) characteristics of a "positive" experience, (2) personal care, (3) interaction with health care providers, and (4) service delivery. Respondents cited being treated as a person with respect and dignity, clear communication, access to relevant and timely information, and care that takes their needs into account as important aspects. Communication, consistency, and ongoing interactions with staff were highlighted as essential elements of a positive experience, yet areas where improvements in care are necessary.Conclusion: Patients reported a range of aspects that contribute to positive and negative care experiences which can be used to guide quality improvement initiatives in cancer centers. Results underscore the importance of having data collection systems in place to ensure agencies and providers have timely feedback about patients' experiences and concerns in order to provide responsive and individualized care.
      pubtype: Academic Journal
      doctype: Journal Article
      ougenre: Article
    language: English
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