Exploring Human Values in the Design of a Web-Based QoL-Instrument for People with Mental Health Problems: A Value Sensitive Design Approach.

Quality of life (QoL) is an important outcome measure in mental health care. Currently, QoL is mainly measured with paper and pencil questionnaires. To contribute to the evaluation of treatment, and to enhance substantiated policy decisions in the allocation of resources, a web-based, personalized,...

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Publicado en:Science & Engineering Ethics Vol. 26; no. 2; pp. 871 - 899
Autores principales: Maathuis, Ivo, Niezen, Maartje, Buitenweg, David, Bongers, Ilja L., van Nieuwenhuizen, Chijs
Formato: Artículo
Publicado: Springer Nature Apr2020
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Acceso en línea:Ver este registro en EBSCOhost
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        atl: Exploring Human Values in the Design of a Web-Based QoL-Instrument for People with Mental Health Problems: A Value Sensitive Design Approach.
      aug:
        au:
          Maathuis, Ivo
          Niezen, Maartje
          Buitenweg, David
          Bongers, Ilja L.
          van Nieuwenhuizen, Chijs
        affil:
          Scientific Center for Care and Wellbeing (Tranzo), Tilburg University, Tilburg, The Netherlands
          HAN University of Applied Sciences, Arnhem, The Netherlands
          Tilburg Institute for Law, Technology, and Society (TILT), Tilburg, The Netherlands
          Rathenau Institute, The Hague, The Netherlands
          GGzE, Institute for Mental Health Care, Eindhoven, The Netherlands
      su:
        Mental health services
        Mental health
        Resource allocation
        Internet privacy
      sug:
        subj:
          Mental health services
          Mental health
          Resource allocation
          Internet privacy
      keyword:
        Mental healthcare
        mHealth
        Quality of life
        Value sensitive design
      ab: Quality of life (QoL) is an important outcome measure in mental health care. Currently, QoL is mainly measured with paper and pencil questionnaires. To contribute to the evaluation of treatment, and to enhance substantiated policy decisions in the allocation of resources, a web-based, personalized, patient-friendly and easy to administer QoL instrument has been developed: the QoL-ME. While human values play a significant role in shaping future use practices of technologies, it is important to anticipate on them during the design of the QoL-instrument. The value sensitive design (VSD) approach offers a theory and method for addressing these values in a systematic and principled manner in the design of technologies. While the VSD approach has been applied in the field of somatic care, we extended the VSD approach to the field of mental healthcare with the aim to enable developers of the QoL-instrument to reflect on important human values and anticipate potential value conflicts in its design. We therefore explored how VSD can be used by investigating the human values that are relevant for the design of the QoL-ME. Our exploration reveals that the values autonomy, efficiency, empowerment, universal usability, privacy, redifinition of roles, (redistribution) of responsibilites, reliability, solidarity, surveillance and trust are at stake for the future users of the technology. However, we argue that theoretical reflections on the potential ethical impact of a technology in the design phase can only go so far. To be able to comprehensively evaluate the usability the VSD approach, a supplementary study of the use practices of the technology is needed.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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