'Hybrid' thoughts on care for people with dementia and their families: critical perspectives on care work.
Background: Inclusion and participation are rights for all, according to the United Nation's Universal Declaration of Human Rights. Historically, dementia has been defined primarily in terms of loss -- loss of cognitive and communicative skills, loss of identity and personhood, and loss of personal...
| Publicado en: | International Practice Development Journal Vol. 10; no. Suppl 1; pp. 1 - 12 |
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| Autor principal: | |
| Formato: | case study research Journal Article |
| Publicado: |
Foundation of Nursing Studies
2020
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=142575686&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 142575686 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 20469292 ESKU jtl: International Practice Development Journal issn: 20469292 maglogo: N pubinfo: dt: 2020 vid: 10 iid: Suppl 1 pid: 20454 pub: Foundation of Nursing Studies artinfo: ui: 142575686 142575686 142575686 10.19043/ipdj.10suppl.004 142575686 ppf: 1 ppct: 11 formats: fmt: @attributes: type: P tig: atl: 'Hybrid' thoughts on care for people with dementia and their families: critical perspectives on care work. aug: au: Ursin, Gøril affil: Nord University, Bodø, Norway sug: subj: Dementia Dementia Patients Family Social Participation Citizenship Social Values Health Services Human Semi-Structured Interview Health Personnel Secondary Analysis Norway Female Middle Age Male Qualitative Studies Middle Aged: 45-64 years Female Male ab: Background: Inclusion and participation are rights for all, according to the United Nation's Universal Declaration of Human Rights. Historically, dementia has been defined primarily in terms of loss -- loss of cognitive and communicative skills, loss of identity and personhood, and loss of personal relations (Capstick and Baldwin, 2007). Critical perspectives have challenged this view on people living with dementia and enabling people to participate as equal citizens in society is a significant theme in dementia research. This article uses a citizenship approach to dementia and illustrates how care and care work needs values shifts to enable people with dementia to become equal citizens in society. Aim: This article aims to demonstrate the effect on care work when citizenship is chosen as a value for care. Methods: This article draws on empirical qualitative interviews with families living with dementia, healthcare and medical personnel, and care managers who are part of everyday life for these families. Analytically, the article draws on citizenship theory and empirical philosophy. Results: Two necessary values shifts are outlined: from patient to citizen and from personal care to care collectives. These ways of doing care work depend on other practices, especially the way knowledge and experience is constructed and understood. This article discusses the need for other forms of knowledge and expert experience. Conclusions and implications for practice: * Caring for people with dementia needs a values shift toward enhancing agency * Re-orienting care work towards care collectives shapes new possibilities for people living with dementia * Care work that pays attention to the construction of everyday life can promote participation and inclusion for people living with dementia pubtype: Academic Journal doctype: case study research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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