Development and validation of the University of Washington caregiver stress and benefit scales for caregivers of children with or without serious health conditions.
Purpose: To develop item response theory (IRT)-based item banks and short forms to measure stress and benefit related to caregiving for children, including children with epilepsy or other serious health conditions.Methods: Items developed with feedback from neurologists and caregivers of children wi...
| Publicado en: | Quality of Life Research Vol. 29; no. 5; pp. 1361 - 1372 |
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| Autores principales: | , , , , , , |
| Formato: | Journal Article |
| Publicado: |
Springer Nature
May2020
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=142973619&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 142973619 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09629343 GPQ jtl: Quality of Life Research issn: 09629343 maglogo: N pubinfo: dt: May2020 vid: 29 iid: 5 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 142973619 142973619 NLM31902052 10.1007/s11136-019-02409-0 NLM31902052 142973619 ppf: 1361 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Development and validation of the University of Washington caregiver stress and benefit scales for caregivers of children with or without serious health conditions. aug: au: Amtmann, Dagmar Liljenquist, Kendra S. Bamer, Alyssa Gammaitoni, Arnold R. Aron, Carey R. Galer, Bradley S. Jensen, Mark P. affil: Department of Rehabilitation Medicine, University of Washington, Box 354237, 98195, Seattle, WA, USA sug: subj: Stress, Psychological Psychosocial Factors Psychometrics Methods Quality of Life Psychosocial Factors Caregivers Psychosocial Factors Family Psychosocial Factors Middle Age Male Child Reproducibility of Results Depression Psychosocial Factors Down Syndrome Therapy Chronic Disease Therapy Epilepsy Therapy Female Muscular Dystrophy Therapy Anxiety Psychosocial Factors Caregiver Strain Index Clinical Assessment Tools Questionnaires Short Portable Mental Status Questionnaire Middle Aged: 45-64 years Child: 6-12 years Male Female ab: Purpose: To develop item response theory (IRT)-based item banks and short forms to measure stress and benefit related to caregiving for children, including children with epilepsy or other serious health conditions.Methods: Items developed with feedback from neurologists and caregivers of children with epilepsy were tested in cognitive interviews and administered to caregivers of children with severe epilepsy (N = 128), down syndrome (N = 143) and muscular dystrophy (N = 129), as well as a community sample of US caregivers (N = 322). IRT was used to analyze the data. Test-retest reliability was assessed using a two-way random effects (2,1) intraclass correlation coefficient (ICC). Validity was assessed by a pattern of correlations with relevant constructs (stress, depression, anxiety, and resilience) and by the pattern of scores by known groups.Results: Caregivers of children with serious health conditions reported more stress and less benefit than the general sample. The final caregiver stress item bank (k = 19) and the caregiver benefit item bank (k = 13) were calibrated using IRT and centered on a sample of community caregivers representative of the US general caregiver population. Short form scores are highly correlated with full bank scores (r ≥ 0.98) and IRT reliability exceed 90% for most levels. Test-retest reliability was high (ICC > 0.92) for banks and short forms.Conclusions: Results provide strong support for reliability and validity of the caregiver stress and benefit scores. Instruments are publicly available, flexible, brief, and provide reliable and valid scores of caregiver stress and benefit of caregivers of children with and without serious health conditions. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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