Assessing the availability and quality of Spanish‐language genetic resources for patients on the internet.
In recent years, people increasingly are accessing health information on the Internet. A significant percentage of the United States (US) population has limited English proficiency with Spanish being the most common other language spoken. There is limited research on the presence or quality of Spani...
| Publicado en: | Journal of Genetic Counseling Vol. 29; no. 3; pp. 381 - 391 |
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| Autores principales: | , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jun2020
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=143570264&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 143570264 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10597700 41A jtl: Journal of Genetic Counseling issn: 10597700 maglogo: N pubinfo: dt: Jun2020 vid: 29 iid: 3 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 143570264 143570264 145814950 143570264 10.1002/jgc4.1267 143570264 ppf: 381 ppct: 10 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: Assessing the availability and quality of Spanish‐language genetic resources for patients on the internet. aug: au: Westrate, Libby Brennan, Simone Carmany, Erin P. affil: Division of Genetic, Genomic and Metabolic Disorders, Children's Hospital of Michigan, Detroit Michigan sug: subj: Internet Genetics Information Resources Evaluation Access to Information Quality Assessment Health Information Spanish Language Human World Wide Web Communication Cultural Diversity Descriptive Statistics Data Analysis Software T-Tests ab: In recent years, people increasingly are accessing health information on the Internet. A significant percentage of the United States (US) population has limited English proficiency with Spanish being the most common other language spoken. There is limited research on the presence or quality of Spanish‐language health information, particularly in genetics, on the Internet overall. Therefore, we aimed to assess the availability and quality of patient‐specific education resources in Spanish available on US‐based support group websites for a wide range of genetic conditions. We assessed 630 websites through the Disease InfoSearch website (www.diseaseinfosearch.org), created by Genetic Alliance, for the presence of Spanish genetic resources for patients with a new diagnosis of a genetic condition. Of these, 261 (41.4%) websites met study criteria for further evaluation. Of the 99 websites (37.9%) that had any Spanish content, 45 Spanish resources and a paired English resource from the same site met criteria for a quality assessment. Scoring was performed by two independent raters using Ensuring Quality Information for Patients (EQIP), a previously validated tool to assess the quality of written health information. The mean scores for Spanish and English resources were 57.3% and 58.4%, respectively, corresponding to a good quality score according to guidelines proposed by authors of EQIP. An independent two‐sample t test showed no significant difference in the mean quality scores between Spanish and English resources (p‐value =.506). Overall, we found limited availability of Spanish resources on the websites analyzed, but of those identified, there was no difference between the quality of Spanish resources and the paired English resources from the same site. These results highlight the need for genetics professionals to advocate for the creation of more Spanish patient resources. However, genetics professionals can have some reassurance that if a support group does produce a Spanish resource, it likely has comparable quality to its English equivalent. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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