Burden of living with multiple concurrent symptoms in patients with end‐stage renal disease.
Aims and objectives: To explore the experience of multiple concurrent symptoms over time and their impact on daily living in patients with end‐stage renal disease undergoing dialysis. Background: Patients undergoing dialysis experienced multiple concurrent symptoms because of the disease and treatme...
| Publicado en: | Journal of Clinical Nursing (John Wiley & Sons, Inc.) Vol. 29; no. 13/14; pp. 2589 - 2602 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
John Wiley & Sons, Inc.
Jul2020
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=143720446&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 143720446 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09621067 LVDZ jtl: Journal of Clinical Nursing (John Wiley & Sons, Inc.) issn: 09621067 maglogo: N pubinfo: dt: Jul2020 vid: 29 iid: 13/14 pid: 52269 pub: John Wiley & Sons, Inc. artinfo: ui: 143720446 143720446 145775125 143720446 10.1111/jocn.15282 143720446 ppf: 2589 ppct: 13 formats: tig: atl: Burden of living with multiple concurrent symptoms in patients with end‐stage renal disease. aug: au: Ng, Marques Shek Nam Wong, Cho Lee Ho, Eva Hau Sim Hui, Yun Ho Miaskowski, Christine So, Winnie Kwok Wei affil: The Nethersole School of Nursing, The Chinese University of Hong Kong, Hong Kong, China sug: subj: Kidney Failure, Chronic Symptoms Kidney Failure, Chronic Therapy Stress, Psychological Quality of Life Dialysis Patients Life Experiences Evaluation Human Descriptive Research Qualitative Studies Prospective Studies Time Factors Purposive Sample Hong Kong Patient Attitudes Semi-Structured Interview Audiorecording Thematic Analysis Funding Source Checklists Narratives Activities of Daily Living Physical Activity Social Behavior Functional Status Restricted Diet Patient Centered Care Nursing Process Nursing Practice Hospitals Scales Interview Guides Coding Male Female Adult Middle Age Aged Descriptive Statistics Fluid Intake Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Male Female ab: Aims and objectives: To explore the experience of multiple concurrent symptoms over time and their impact on daily living in patients with end‐stage renal disease undergoing dialysis. Background: Patients undergoing dialysis experienced multiple concurrent symptoms because of the disease and treatment. Evidence suggests that these symptoms cluster around and have a significant impact on quality of life. However, the experience of this impact remained not clear. Design: A longitudinal descriptive qualitative study. Methods: Ten patients were purposely selected from the cohort of a longitudinal quantitative study in Hong Kong. A total of 28 face‐to‐face semi‐structured interviews were conducted between July 2017 and July 2018. Interviews were audiotaped, transcribed and analysed using a thematic analysis approach. Findings were reported following the COREQ checklist. Results: Four themes emerged from the data. The first theme "complex symptom experience" described a dynamic pattern of symptoms among patients. Although patients were unaware of the relationships among symptoms, a cluster of tiredness, breathlessness, dizziness and sleep disturbance was identified in the narratives of individual symptoms. The report of symptom experience and its change revealed a unique pattern of symptom perception. The three other themes illustrated the impact of multiple concurrent symptoms on daily living, namely "decreased physical functioning," "changes in social functioning" and "diet and fluid restrictions." Conclusions: Patients perceived dynamic and complex symptom experiences. This perception appears to be modulated by a number of factors. In addition, these experiences had negative and positive effects on patients' daily living. Relevance to clinical practice: Patients perceived unique impact of symptoms on daily living. Therefore, a nurse‐led person‐centred approach of care is warranted. In addition to routine symptom assessment, nurses need to capture the specific impact of symptoms on day‐to‐day life. Based on this assessment, symptom management interventions (e.g. health education, referral) can be tailor‐made and prioritised. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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