Community-Based Conversations about Advance Care Planning for Underserved Populations Using Lay Patient Navigators.

Background: Widespread community engagement in advance care planning (ACP) is needed to overcome barriers to ACP implementation. Objective: Develop, implement, and evaluate a model for community-based ACP in rural populations with low English language fluency and health care access using lay patient...

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Publicado en:Journal of Palliative Medicine Vol. 23; no. 7; pp. 907 - 915
Autores principales: Fink, Regina M., Kline, Danielle M., Bailey, F. Amos, Handel, Daniel L., Jordan, Sarah R., Lum, Hillary D., Fischer, Stacy M.
Formato: pictorial research tables/charts Journal Article
Publicado: Mary Ann Liebert, Inc. Jul2020
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jul2020
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      pub: Mary Ann Liebert, Inc.
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        10.1089/jpm.2019.0470
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        atl: Community-Based Conversations about Advance Care Planning for Underserved Populations Using Lay Patient Navigators.
      aug:
        au:
          Fink, Regina M.
          Kline, Danielle M.
          Bailey, F. Amos
          Handel, Daniel L.
          Jordan, Sarah R.
          Lum, Hillary D.
          Fischer, Stacy M.
        affil: Division of General Internal Medicine, Department of Medicine, University of Colorado School of Medicine, Anschutz Medical Campus, Aurora, Colorado, USA.
      sug:
        subj:
          Advance Care Planning
          Medically Underserved
          Patient Navigation
          Communities
          Conversation
          Human
          Program Evaluation
          Questionnaires
          Male
          Female
          Descriptive Statistics
          Implementation Science
          Thematic Analysis
          Interviews
          Rural Areas
          Urban Areas
          Goal-Setting
          Multilingualism
          Male
          Female
      ab: Background: Widespread community engagement in advance care planning (ACP) is needed to overcome barriers to ACP implementation. Objective: Develop, implement, and evaluate a model for community-based ACP in rural populations with low English language fluency and health care access using lay patient navigators. Design: A statewide initiative to improve ACP setting/subjects—trained in a group session approach, bilingual patient navigators facilitated 1-hour English and Spanish ACP sessions discussing concerns about choosing a surrogate decision maker and completing an advance directive (AD). Participants received bilingual informational materials, including Frequently Asked Questions, an AD in English or Spanish, and Goal Setting worksheet. Measurement: Participants completed a program evaluation and 4-item ACP Engagement Survey (ACP-4) postsession. Results: For 18 months, 74 ACP sessions engaged 1034 participants in urban, rural, and frontier areas of the state; 39% were ethnically diverse, 69% female. A nurse or physician co-facilitated 49% of sessions. Forty-seven percent of participants completed an ACP-4 with 29% planning to name a decision maker in the next 6 months and 21% in the next 30 days; 31% were ready to complete an AD in the next 6 months and 22% in the next 30 days. Evaluations showed 98% were satisfied with sessions. Thematic analysis of interviews with facilitators highlighted barriers to delivering an ACP community-based initiative, strategies used to build community buy-in and engagement, and ways success was measured. Conclusion: Patient navigators effectively engaged underserved and ethnically diverse rural populations in community-based settings. This model can be adapted to improve ACP in other underserved populations.
      pubtype: Academic Journal
      doctype:
        pictorial
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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