Phenotypic and Imaging Spectrum Associated With WDR45.

Background: Mutations in the X-linked gene WDR45 cause neurodegeneration with brain iron accumulation type 5. Global developmental delay occurs at an early age with slow progression to dystonia, parkinsonism, and dementia due to progressive iron accumulation in the brain.Methods: We present 17 new c...

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Publicado en:Pediatric Neurology Vol. 109; pp. 56 - 63
Autores principales: Adang, Laura A., Pizzino, Amy, Malhotra, Alka, Dubbs, Holly, Williams, Catherine, Sherbini, Omar, Anttonen, Anna-Kaisa, Lesca, Gaetan, Linnankivi, Tarja, Laurencin, Chloé, Milh, Matthieu, Perrine, Charles, Schaaf, Christian P., Poulat, Anne-Lise, Ville, Dorothee, Hagelstrom, Tanner, Perry, Denise L., Taft, Ryan J., Goldstein, Amy, Vossough, Arastoo
Formato: research tables/charts Journal Article
Publicado: Elsevier B.V. Aug2020
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Aug2020
      vid: 109
      pid: 467
      pub: Elsevier B.V.
      place: New York, New York
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        144713349
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        144713349
        10.1016/j.pediatrneurol.2020.03.005
        NLM32387008
        144713349
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        atl: Phenotypic and Imaging Spectrum Associated With WDR45.
      aug:
        au:
          Adang, Laura A.
          Pizzino, Amy
          Malhotra, Alka
          Dubbs, Holly
          Williams, Catherine
          Sherbini, Omar
          Anttonen, Anna-Kaisa
          Lesca, Gaetan
          Linnankivi, Tarja
          Laurencin, Chloé
          Milh, Matthieu
          Perrine, Charles
          Schaaf, Christian P.
          Poulat, Anne-Lise
          Ville, Dorothee
          Hagelstrom, Tanner
          Perry, Denise L.
          Taft, Ryan J.
          Goldstein, Amy
          Vossough, Arastoo
        affil: Division of Neurology, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania
      sug:
        subj:
          Developmental Disabilities Diagnosis
          Developmental Disabilities
          Developmental Disabilities Etiology
          Epilepsy Physiopathology
          Epilepsy Diagnosis
          Brain Diseases Physiopathology
          Iron Metabolism Disorders Complications
          Demyelinating Diseases
          Iron Metabolism Disorders
          Brain Diseases Diagnosis
          Brain Diseases Complications
          Iron Metabolism Disorders Diagnosis
          Epilepsy
          Brain Diseases
          Demyelinating Diseases Physiopathology
          Demyelinating Diseases Etiology
          Iron Metabolism Disorders Physiopathology
          Demyelinating Diseases Diagnosis
          Epilepsy Etiology
          Carrier Proteins
          Developmental Disabilities Physiopathology
          Adolescence
          Adult
          Human
          Phenotype
          Child, Preschool
          Young Adult
          Infant
          Prospective Studies
          Child
          Middle Age
          Female
          Male
          Comparative Studies
          Multicenter Studies
          Evaluation Research
          Validation Studies
          Scales
          Funding Source
          Adolescent: 13-18 years
          Adult: 19-44 years
          Child, Preschool: 2-5 years
          Infant: 1-23 months
          Child: 6-12 years
          Middle Aged: 45-64 years
          Female
          Male
      ab: Background: Mutations in the X-linked gene WDR45 cause neurodegeneration with brain iron accumulation type 5. Global developmental delay occurs at an early age with slow progression to dystonia, parkinsonism, and dementia due to progressive iron accumulation in the brain.Methods: We present 17 new cases and reviewed 106 reported cases of neurodegeneration with brain iron accumulation type 5. Detailed information related to developmental history and key time to event measures was collected.Results: Within this cohort, there were 19 males. Most individuals were molecularly diagnosed by whole-exome testing. Overall 10 novel variants were identified across 11 subjects. All individuals were affected by developmental delay, most prominently in verbal skills. Most individuals experienced a decline in motor and cognitive skills. Although most individuals were affected by seizures, the spectrum ranged from provoked seizures to intractable epilepsy. The imaging findings varied as well, often evolving over time. The classic iron accumulation in the globus pallidus and substantia nigra was noted in half of our cohort and was associated with older age of image acquisition, whereas myelination abnormalities were associated with younger age.Conclusions: WDR45 mutations lead to a progressive and evolving disorder whose diagnosis is often delayed. Developmental delay and seizures predominate in early childhood, followed by a progressive decline of neurological function. There is variable expressivity in the clinical phenotypes of individuals with WDR45 mutations, suggesting that this gene should be considered in the diagnostic evaluation of children with myelination abnormalities, iron deposition, developmental delay, and epilepsy depending on the age at evaluation.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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