Community-Based Screening and Early Intervention for Birth Defects and Developmental Disabilities: Lessons from the RBSK Programme in India.
Purpose: The Rashtriya Bal Swasthya Karyakram (RBSK) is an ongoing screening and early intervention programme for children in India. Children with birth defects and developmental disabilities from rural and urban communities are referred for treatment and therapies to early intervention centres loca...
| Publicado en: | Disability, CBR & Inclusive Development Vol. 31; no. 1; pp. 30 - 47 |
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| Autores principales: | , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Asia Pacific Disability Rehabilitation Journal
Spring2020
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=145325331&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 145325331 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 22115242 BGWU jtl: Disability, CBR & Inclusive Development issn: 22115242 maglogo: N pubinfo: dt: Spring2020 vid: 31 iid: 1 pid: 20475 pub: Asia Pacific Disability Rehabilitation Journal place: Jayanagar, Bangalore - 560011, <Blank> artinfo: ui: 145325331 145325331 145325331 10.5463/DCID.v31i1.890 145325331 ppf: 30 ppct: 17 formats: fmt: @attributes: type: P tig: atl: Community-Based Screening and Early Intervention for Birth Defects and Developmental Disabilities: Lessons from the RBSK Programme in India. aug: au: Kar, Anita Radhakrishnan, Bhagyashree Girase, Trushna Ujagare, Dhammasagar Patil, Archana affil: Birth Defects and Childhood Disability Research Centre, Pune, India sug: subj: Rehabilitation, Community-Based Program Implementation Health Screening Early Intervention Developmental Disabilities Diagnosis Child Health Abnormalities Prevention and Control Caregivers Psychosocial Factors Treatment Outcomes Human Cross Sectional Studies Semi-Structured Interview Referral and Consultation Children with Disabilities Continuity of Patient Care Cognition Health Services Accessibility Health Care Delivery India Public Health Community Medicine ab: Purpose: The Rashtriya Bal Swasthya Karyakram (RBSK) is an ongoing screening and early intervention programme for children in India. Children with birth defects and developmental disabilities from rural and urban communities are referred for treatment and therapies to early intervention centres located in urban areas. This study primarily aimed at determining caregiver uptake and compliance to referral advice of the RBSK, with the larger goal of determining the utility of the community-based screening and district-based intervention service model for caregivers of children with disabilities. Method: Three administrative blocks and one municipal corporation area of Pune district, in Maharashtra, were randomly selected. The sample consisted of 115 caregivers of children with disabilities. They were interviewed using a semi- structured questionnaire that investigated uptake of referral advice, treatment outcome, current health status of the child and reasons for noncompliance, three to nine months after the first referral by the RBSK team. Results: Sixty-four caregivers were aware of their child's disability, but most children remained untreated. After screening and referral by the RBSK team, compliance was high for treatable conditions like congenital heart defects. Treatment was discontinued for 83% (24 out of 29) of children with developmental disabilities. Reasons for discontinuation included lengthy waiting time, distance to facility, difficulty in transporting the child, loss of wages, and denial of the child's disability. Conclusion and Implications: The results indicated that the RBSK programme provides treatment opportunities for children who are left undiagnosed and untreated in the community. Providing rehabilitation services at district centres is a barrier for service uptake. Alternative models such as early childhood development screening and integrating rehabilitation services at the primary healthcare level may be more feasible to provide services for children with disabilities in India. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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