Bridging different realities - a qualitative study on patients' experiences of preoperative care for benign hysterectomy and opportunistic salpingectomy in Sweden.

Background: Hysterectomy is a common procedure worldwide and removing healthy fallopian tubes at the time of hysterectomy (opportunistic salpingectomy) to possibly prevent ovarian cancer is increasing in frequency, but still controversial. The experiences and perceptions of women, eligible for the p...

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Publicado en:BMC Women's Health Vol. 20; no. 1
Autores principales: Collins, Elin, Lindqvist, Maria, Mogren, Ingrid, Idahl, Annika
Formato: research Journal Article
Publicado: BioMed Central 9/11/2020
Acceso en línea:Ver este registro en EBSCOhost
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      dt: 9/11/2020
      vid: 20
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      pub: BioMed Central
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        10.1186/s12905-020-01065-8
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        atl: Bridging different realities - a qualitative study on patients' experiences of preoperative care for benign hysterectomy and opportunistic salpingectomy in Sweden.
      aug:
        au:
          Collins, Elin
          Lindqvist, Maria
          Mogren, Ingrid
          Idahl, Annika
        affil: Department of Clinical Sciences, Obstetrics and Gynecology, Umeå University, SE-901 87, Umeå, Sweden
      sug:
        subj:
          Ovarian Neoplasms Surgery
          Hysterectomy
          Salpingectomy
          Interviews
          Sweden
          Qualitative Studies
          Focus Groups
          Female
          Adult
          Fear
          Human
          Ovarian Neoplasms Prevention and Control
          Middle Age
          Preoperative Care
          Information Literacy
          Validation Studies
          Comparative Studies
          Evaluation Research
          Multicenter Studies
          Arthritis Impact Measurement Scales
          Questionnaires
          Scales
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Female
      ab: Background: Hysterectomy is a common procedure worldwide and removing healthy fallopian tubes at the time of hysterectomy (opportunistic salpingectomy) to possibly prevent ovarian cancer is increasing in frequency, but still controversial. The experiences and perceptions of women, eligible for the procedure, have not been previously investigated. This study aims to, among women waiting to undergo hysterectomy, explore i) experiences and perceptions of self and healthcare in relation to their elective surgery, ii) perceptions of risks and benefits of hysterectomy, including opportunistic salpingectomy.Methods: A qualitative study, with focus group discussions including women < 55 years, planned for hysterectomy with ovarian preservation, was performed. Participants were recruited through purposive sampling from six gynecological departments in different parts of Sweden, including both country and university hospitals. Focus group discussions were conducted using a semi-structured interview guide, digitally recorded, transcribed verbatim and analysed by qualitative manifest and latent content analysis.Results: Twenty-one Swedish-speaking women participated. They were 40-53 years of age, reported varying educational levels, countries of birth and indications for hysterectomy. Analysis rendered a theme "Bridging different realities" over four categories: "Being a woman today", "Experiencing and managing body failure", "Navigating the healthcare system" and "Processing continuously until surgery", including 17 subcategories. The participants displayed varying attitudes towards the significance of their uterus in being a woman. A vague understanding of their body was described, leading to fear related to the reasons for surgery as well as surgery itself. Participants described difficulties understanding and recalling information but also stated that insufficient information was provided. Perceptions of the risks and benefits of opportunistic salpingectomy varied. Involvement in decisions regarding the hysterectomy and potential opportunistic salpingectomy was perceived to be dependent on the counselling gynecologist.Conclusions: The theme Bridging different realities captures the complexity of women deciding on removal of their uterus, and possibly fallopian tubes. It also describes the women's interactions with healthcare and perceived difference between the health professionals and the women's perception of the situation, as viewed by the women. Bridging the different realities faced by patients is required to enable shared decision-making, through sufficient support from healthcare.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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