Commentary on "Diabetes and people with learning disabilities: issues for policy, practice and education".

Purpose: There has been an increase in research exploring the area of intellectual and developmental disabilities (IDD) and diabetes. Despite being described as instrumental to diabetes care for people with IDD, the role and experiences of family carers, such as parents and siblings, are often negle...

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Publicado en:Tizard Learning Disability Review Vol. 25; no. 1; pp. 35 - 40
Autores principales: Redquest, Brianne, Lunsky, Yona
Formato: commentary Journal Article
Publicado: Emerald Publishing Limited 2020
Acceso en línea:Ver este registro en EBSCOhost
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      pub: Emerald Publishing Limited
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        146074683
        10.1108/TLDR-11-2019-0035
        146074683
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        atl: Commentary on "Diabetes and people with learning disabilities: issues for policy, practice and education".
      aug:
        au:
          Redquest, Brianne
          Lunsky, Yona
        affil: Azrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, Toronto, Canada
      sug:
        subj:
          Diabetes Mellitus
          Intellectual Disability United Kingdom
          Health Policy
          Diabetes Education
          Medical Practice
          United Kingdom
      ab: Purpose: There has been an increase in research exploring the area of intellectual and developmental disabilities (IDD) and diabetes. Despite being described as instrumental to diabetes care for people with IDD, the role and experiences of family carers, such as parents and siblings, are often neglected in this research. However, it is clear that family carers do not feel that they have sufficient knowledge about diabetes. The purpose of this commentary is to extend the content from "Diabetes and people with learning disabilities: Issues for policy, practice, and education (Maine et al., 2020)" and discuss how family carers can feel better supported when caring for someone with IDD and diabetes. Design/methodology/approach: This commentary discusses specific efforts such as STOP diabetes, DESMOND-ID and OK-diabetes for people with IDD including family carers. Encouragement is given for health care providers to recommend such programmes to people with IDD and their family carers. It is also suggested that health care providers involve family carers in diabetes care planning and implementation for people with IDD. Findings: It is hoped that if changes are made to current diabetes practices and more research with family carers is conducted, diabetes prevention and management for people with IDD will be more successful and family carers can feel more confident in providing support to their loved ones. Originality/value: Research exploring the role of family carers in diabetes care for people with IDD and diabetes is very limited. This commentary makes recommendations to help family carers feel better supported in their role. It also provides areas for future research.
      pubtype: Academic Journal
      doctype:
        commentary
        Journal Article
      ougenre: Article
    language: English
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