Heart failure caregivers' support services: Implications for palliative care.

Palliative care initiatives strive to control symptoms and improve the quality of care for individuals with heart failure (HF) and their informal caregivers. Yet, caregiving is stressful for many caregivers and requires a delicate balancing act between providing quality care and maintaining other re...

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Published in:Progress in Palliative Care Vol. 28; no. 5; pp. 318 - 326
Main Authors: Grant, Joan S., Graven, Lucinda J.
Format: research tables/charts Journal Article
Published: Taylor & Francis Ltd Oct2020
Online Access:View this record in EBSCOhost
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      dt: Oct2020
      vid: 28
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      pub: Taylor & Francis Ltd
      place: Philadelphia, Pennsylvania
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        10.1080/09699260.2020.1716146
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        atl: Heart failure caregivers' support services: Implications for palliative care.
      aug:
        au:
          Grant, Joan S.
          Graven, Lucinda J.
        affil: School of Nursing, University of Alabama at Birmingham, 1701 University Blvd, Birmingham, AL 35294-1210, USA
      sug:
        subj:
          Heart Failure
          Caregiver Support
          Palliative Care
          Human
          Caregivers Psychosocial Factors
          Secondary Analysis
          Cross Sectional Studies
          Descriptive Research
          Exploratory Research
          Content Analysis
          Male
          Female
          Adult
          Middle Age
          Support Groups
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Male
          Female
      ab: Palliative care initiatives strive to control symptoms and improve the quality of care for individuals with heart failure (HF) and their informal caregivers. Yet, caregiving is stressful for many caregivers and requires a delicate balancing act between providing quality care and maintaining other responsibilities. Support services are a crucial component of palliative care. Yet, little is known regarding what support services HF caregivers need to assist with caregiving duties. Thus, the purpose of this study was to identify support services informal caregivers perceive would be useful in caring for individuals with heart failure in the home. This secondary analysis was part of a cross-sectional, descriptive, exploratory study which included 530 heart failure caregivers, using an online self-report instrument. Content and quantitative data analyses were conducted. Caregivers were primarily Caucasian (n = 415; 78.3%) male (n = 270; 50.9% male), with an average age of 41.4 (±10.4) years. Individuals with heart failure were mostly male (n = 297; 56.0%), age 54.3 (± 14.8) years of age and had New York Heart Association Class I-II heart failure (n = 375; 70.7%). Needed support services identified by caregivers related to cost effective heart failure support, caregiver information/education/training, and caregiver support. These services had two or more components. Caregivers of individuals with heart failure experience complex problems in the home that require important services to enhance palliative care. Exploring ways to provide these important support services will assist in the development of interventions to reduce negative outcomes and enhance heart failure palliative care.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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