Narrating personal experience of living with learning disabilities and mental health issues in institutional and community settings: A case study.

Accessible summary: This is a case study about a man with learning disabilities who has mental health issues.The case study describes the way that he told a researcher about his life.Thirty years of his earlier life were spent in a long‐stay hospital in England, UK and more recently he has lived in...

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Publicado en:British Journal of Learning Disabilities Vol. 48; no. 4; pp. 323 - 332
Autores principales: Sutton, Paul, Gates, Bob
Formato: research Journal Article
Publicado: Wiley-Blackwell Dec2020
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Dec2020
      vid: 48
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        atl: Narrating personal experience of living with learning disabilities and mental health issues in institutional and community settings: A case study.
      aug:
        au:
          Sutton, Paul
          Gates, Bob
        affil: College of Nursing, Midwifery and Healthcare, University of West London, Brentford, UK
      sug:
        subj:
          Intellectual Disability
          Mental Disorders
          Life Experiences Evaluation
          Attitude to Health Evaluation
          Long Term Care
          Residential Care
          Human
          Case Studies
          Narratives
          Structured Interview
          Audiorecording
          Attitude of Health Personnel
          Record Review
          Psychiatric Patients Psychosocial Factors
          England
          Schizophrenia
          Paranoid Disorders
          Thematic Analysis
      ab: Accessible summary: This is a case study about a man with learning disabilities who has mental health issues.The case study describes the way that he told a researcher about his life.Thirty years of his earlier life were spent in a long‐stay hospital in England, UK and more recently he has lived in a community setting with five other people.This research is important as it assists us to understand the experiences of people with learning disabilities who have mental health needs. Background: Historically, the emotional lives and mental health needs of adults with learning disabilities received scant attention, especially when the policy of institutionalisation was at its zenith in the UK. Materials and Methods: This case study employed biographical narrative interviews based on a psychosocial approach. The main sources of data production were two loosely structured, audio‐taped, interviews with a man with learning disabilities. This approach uses free association to elicit an individual's stories about his lived experiences. Additional information was acquired from consultations with key care staff and clinical records maintained by the man's service provider. Results: Data revealed insights into the biography of this man who had a diagnosed mental health disorder. These data recall his personal journey through the care system which took place during an important historical period encompassing both long‐term institutionalisation in segregated settings, and the subsequent implementation of the policy of community care in the UK. He recalls positive and negative experiences while residing in a long‐stay hospital, and the related thoughts and feelings about his life in a community setting in more recent years. Conclusion: This case study contributes to an increasing body of studies that perceive the use of in‐depth interviewing of individuals with learning disabilities as having high ecological validity in the development of authentic knowledge, not readily available through other methods used in the co‐production of data.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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