The impact of prenatal counselling on mothers of surviving children with hypoplastic left heart syndrome: A qualitative interview study.
Objective: To explore the role of antenatal counselling in how parents make treatment decisions following an antenatal diagnosis of Hypoplastic Left Heart Syndrome (HLHS). Background: Antenatal counselling is a critical part of patient management following a diagnosis of fetal congenital heart disea...
| Publicado en: | Health Expectations Vol. 23; no. 5; pp. 1224 - 1231 |
|---|---|
| Autores principales: | , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Oct2020
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=147272362&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 147272362 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Oct2020 vid: 23 iid: 5 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 147272362 145845267 147272362 147272362 10.1111/hex.13103 147272362 ppf: 1224 ppct: 7 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: The impact of prenatal counselling on mothers of surviving children with hypoplastic left heart syndrome: A qualitative interview study. aug: au: Bertaud, Sophie Lloyd, David F. A. Sharland, Gurleen Razavi, Reza Bluebond‐Langner, Myra affil: Department of Imaging Sciences and Biomedical Engineering, King's College London, Guy's and St Thomas' Hospital, London, UK sug: subj: Prenatal Diagnosis Hypoplastic Left Heart Syndrome Survivors In Infancy and Childhood Mothers Psychosocial Factors Prenatal Care Psychosocial Factors Counseling Psychosocial Factors Decision Making Human Child Qualitative Studies Semi-Structured Interview Funding Source Thematic Analysis Content Analysis Comparative Studies Parents of Children with Disabilities Psychosocial Factors Adult Female Psychological Distress Guilt Ethics Child: 6-12 years Adult: 19-44 years Female ab: Objective: To explore the role of antenatal counselling in how parents make treatment decisions following an antenatal diagnosis of Hypoplastic Left Heart Syndrome (HLHS). Background: Antenatal counselling is a critical part of patient management following a diagnosis of fetal congenital heart disease; however, there is a very limited evidence base examining how parents actually experience antenatal counselling and make decisions in this context. Methods: Semi‐structured interviews were conducted with women who had received an antenatal diagnosis of HLHS. Interviews were digitally recorded, anonymised and transcribed verbatim. A thematic content analysis was performed using a constant comparative approach. Results: Eight mothers of surviving children with HLHS were interviewed. Eight key themes emerged including new perspectives on how women receive antenatal counselling and how it affects their decision making. Three themes in particular are new to the literature: (a) Mothers of children with HLHS reported feelings of intense guilt that arose in the antenatal period around potentially causing the condition in their child. (b) For this group of women, recollections of perceived pessimism during antenatal counselling had a lasting impact. (c) Despite support from partners or extended family, women nevertheless experienced a strong sense that antenatal decision making was largely a 'maternal' responsibility. Conclusions: When recounting their experiences of antenatal counselling, mothers of surviving children with HLHS offer new perspectives that can guide fetal cardiologists in how best to support their individual patients. Further research is needed to comprehensively understand the experience of prospective parents counselled for severe forms of fetal congenital heart disease. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|