Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study.

Background: There is substantial prior research on the perspectives of patients on the use of health information for research. Numerous communication barriers challenge transparency between researchers and data participants in secondary database research (eg, waiver of informed consent and knowledge...

Full description

Bibliographic Details
Published in:Journal of Medical Internet Research Vol. 22; no. 12
Main Authors: Schmit, Cason, Ajayi, Kobi V, Ferdinand, Alva O, Giannouchos, Theodoros, Ilangovan, Gurudev, Nowell, W Benjamin, Kum, Hye-Chung
Format: research Journal Article
Published: JMIR Publications Inc. Dec2020
Online Access:View this record in EBSCOhost