Fathers' experiences as carers for autistic children with learning disabilities.
Accessible Summary: This research explored the experience of four fathers of autistic children who also have learning disabilities.Fathers' experiences as carers are increasingly recognised in the literature; however, the studies of parental experience tend to centre mothers. The current research bu...
| Publicado en: | British Journal of Learning Disabilities Vol. 49; no. 1; pp. 13 - 23 |
|---|---|
| Autores principales: | , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Mar2021
|
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=148429797&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 148429797 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13544187 F04 jtl: British Journal of Learning Disabilities issn: 13544187 maglogo: Y pubinfo: dt: Mar2021 vid: 49 iid: 1 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 148429797 146798530 148429797 148429797 10.1111/bld.12349 148429797 ppf: 13 ppct: 10 formats: fmt: @attributes: type: P tig: atl: Fathers' experiences as carers for autistic children with learning disabilities. aug: au: Cameron, Harriet Cooper, Louise affil: The School of Education, Edgar Allen House, The University of Sheffield and Manchester Metropolitan University, Sheffield, UK sug: subj: Parents of Children with Disabilities Psychosocial Factors Fathers Psychosocial Factors Autism Spectrum Disorder In Infancy and Childhood Intellectual Disability In Infancy and Childhood Paternal Attitudes Life Experiences Caregiver Burden Paternal Role Black British Persons Human Male Child Adult United Kingdom Phenomenological Research Interviews Thematic Analysis Fatherhood Helplessness, Learned Anxiety Father-Child Relations Happiness Child: 6-12 years Adult: 19-44 years Male ab: Accessible Summary: This research explored the experience of four fathers of autistic children who also have learning disabilities.Fathers' experiences as carers are increasingly recognised in the literature; however, the studies of parental experience tend to centre mothers. The current research builds upon the recent and important focus upon fathers' experiences.The fathers in this study sometimes felt helpless and unable to fulfil the traditional role as protectors and providers, but they also had strong feelings of closeness with their children and developed new identities through the challenges and joys they experienced alongside their children. Background: This small study explores the lived experience of four UK‐based fathers (one black British, one white Polish and two white British) caring for at least one child with a dual diagnosis of learning disability and autism. The key aim was to get as close as possible to understanding the experience of these fathers in their role as carers. Methods: The study makes use of interpretative phenomenological analysis (IPA) as an approach to gathering (via interview) and making sense of the fathers' experiences. Findings and discussion: We co‐constructed three themes following analysis of the interview transcripts: "fatherhood: not doing enough, not doing it right"; "crossing worlds: relearning how to communicate and reclaiming fatherhood"; and "uncertain futures." We found that, for these fathers, the experiences of anxiety and helplessness were balanced with the appreciation of their value as protectors, their shifting sense of identity and of their closeness with their children. Relationships were central throughout. Conclusions: The exploration of fathers' experiences helps to highlight the less‐measurable, nuanced aspects of the joys and challenges of caring for children with dual diagnoses of learning disability and autism which might be used to enhance the support provided and to inform new approaches. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|