A Pilot Study of a Future Planning Program for Siblings of People With Intellectual and Developmental Disabilities.
Given the increased longevity of people with intellectual and developmental disabilities (IDD), future planning programs are becoming increasingly common. However, although siblings are likely to fulfill caregiving roles for people with IDD, siblings have not been included in future planning interve...
| Publicado en: | Intellectual & Developmental Disabilities Vol. 59; no. 1; pp. 70 - 84 |
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| Autores principales: | , |
| Formato: | research Journal Article |
| Publicado: |
Taylor & Francis Ltd
Feb2021
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=148493422&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 148493422 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 19349491 394C jtl: Intellectual & Developmental Disabilities issn: 19349491 maglogo: N pubinfo: dt: Feb2021 vid: 59 iid: 1 pid: 10290 pub: Taylor & Francis Ltd place: Abingdon, Oxfordshire, <Blank> artinfo: ui: 148493422 148493422 NLM33543278 148493422 10.1352/1934-9556-59.1.70 NLM33543278 148493422 ppf: 70 ppct: 14 formats: tig: atl: A Pilot Study of a Future Planning Program for Siblings of People With Intellectual and Developmental Disabilities. aug: au: Lee, Chung E. Burke, Meghan M. affil: Vanderbilt University Medical Center sug: subj: Intellectual Disability Siblings Child Adult Developmental Disabilities Caregivers Human Pilot Studies Comparative Studies Multicenter Studies Evaluation Research Validation Studies Child: 6-12 years Adult: 19-44 years ab: Given the increased longevity of people with intellectual and developmental disabilities (IDD), future planning programs are becoming increasingly common. However, although siblings are likely to fulfill caregiving roles for people with IDD, siblings have not been included in future planning interventions. The purpose of this study was to evaluate the outcomes and feasibility of the Sibling Training for Early future Planning (STEP) program. Using quantitative and qualitative data, 18 siblings of individuals with IDD participated in the study. After completing the STEP program, participants demonstrated significantly improved feelings of empowerment, disability connectedness, family communication, and knowledge of adult disability services. The STEP program was also feasible given high attendance, low attrition rates, and high participant satisfaction. Implications for research and practice are discussed. pubtype: Academic Journal doctype: research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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