The double sides of hope: The meaning of hope among amyotrophic lateral sclerosis (ALS) patients.

Hope is an important factor in coping and adjusting to life-threatening disease. In this study, we examined the meaning of hope among people with amyotrophic lateral sclerosis (ALS). Semi-structured interviews with 12 people revealed that hope had two contradictory meanings. For some, hope was consi...

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Detalles Bibliográficos
Publicado en:Death Studies Vol. 45; no. 3; pp. 238 - 248
Autores principales: Hamama-Raz, Yaira, Norden, Yair, Buchbinder, Eli
Formato: Artículo
Publicado: Taylor & Francis Ltd 2021
Materias:
Acceso en línea:Ver este registro en EBSCOhost
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      pub: Taylor & Francis Ltd
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        10.1080/07481187.2019.1626946
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        atl: The double sides of hope: The meaning of hope among amyotrophic lateral sclerosis (ALS) patients.
      aug:
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          Hamama-Raz, Yaira
          Norden, Yair
          Buchbinder, Eli
        affil:
          School of Social Work, Ariel University, Ariel, Israel
          Patient Care and Support Department, The Israel ALS Research Association (IsrA.L.S), Haifa, Israel
          School of Social Work, Haifa University, Haifa, Israel
      su:
        Interviewing
        Hope
        Psychological adaptation
        Research methodology
        Amyotrophic lateral sclerosis
      sug:
        subj:
          Interviewing
          Hope
          Psychological adaptation
          Research methodology
          Amyotrophic lateral sclerosis
      ab: Hope is an important factor in coping and adjusting to life-threatening disease. In this study, we examined the meaning of hope among people with amyotrophic lateral sclerosis (ALS). Semi-structured interviews with 12 people revealed that hope had two contradictory meanings. For some, hope was considered an obstacle to achieving control and to actively cope with the disease. Alternatively, other people with ALS regarded hope as a crucial resource, which empowered their coping and control. These findings are discussed in the context of research and theoretical literature about hope and coping processes.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
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