Pilot Executive Functioning Intervention in Epilepsy: Behavioral and Quality of Life Outcomes.
Objective: To examine changes in emotional and behavioral functioning and health-related quality of life (HRQOL) following a web-based executive functioning (EF) intervention open pilot trial (e.g., Epilepsy Journey) for adolescents with epilepsy.Methods: Adolescents with an established diagnosis of...
| Published in: | Journal of Pediatric Psychology Vol. 46; no. 4; pp. 363 - 375 |
|---|---|
| Main Authors: | , , , , , |
| Format: | research tables/charts randomized controlled trial Journal Article |
| Published: |
Oxford University Press / USA
May2021
|
| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=149940886&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 149940886 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 01468693 3YD jtl: Journal of Pediatric Psychology issn: 01468693 maglogo: N pubinfo: dt: May2021 vid: 46 iid: 4 pid: 622 pub: Oxford University Press / USA artinfo: ui: 149940886 149940886 NLM33434271 149940886 10.1093/jpepsy/jsaa119 NLM33434271 149940886 ppf: 363 ppct: 12 formats: tig: atl: Pilot Executive Functioning Intervention in Epilepsy: Behavioral and Quality of Life Outcomes. aug: au: Modi, Avani C Mara, Constance A Schmidt, Matthew Smith, Aimee W Turnier, Luke Wade, Shari L affil: Department of Pediatrics, Cincinnati Children's Hospital Medical Center sug: subj: Epilepsy Therapy Quality of Life Female Executive Function Memory, Short Term Human Male Adolescence Problem Solving Comparative Studies Multicenter Studies Randomized Controlled Trials Evaluation Research Validation Studies Adolescent: 13-18 years Female Male ab: Objective: To examine changes in emotional and behavioral functioning and health-related quality of life (HRQOL) following a web-based executive functioning (EF) intervention open pilot trial (e.g., Epilepsy Journey) for adolescents with epilepsy.Methods: Adolescents with an established diagnosis of epilepsy, EF deficits, and without developmental disorders participated in a single-arm trial of Epilepsy Journey. Epilepsy Journey is a gamified, online learning environment comprised of 10 learning modules targeting EF deficits (e.g., working memory, organization) and tailored to epilepsy with accompanying telehealth problem-solving sessions. Adolescents completed questionnaires assessing emotional and behavioral functioning and HRQOL at baseline, posttreatment, and 2 follow-ups . Longitudinal mixed models and logistic regression analyses were used for these secondary analyses.Results: 39 adolescents were recruited for Epilepsy Journey (Mage=15.3 years; 67% female; 87% White: Non-Hispanic; 39% experienced seizures in the past 3 months). Preliminary data indicate significant improvements in caregiver-reported Externalizing symptoms, Behavioral Symptom Index scores and Adaptive Skills from baseline to 5-month follow-up. Significant improvements were observed for caregiver-reported Mood/Behavior and self-reported Impact, Cognitive Functioning, Executive Functioning, and Sleep subscales of the PedsQL Epilepsy Module. Clinically significant improvements (e.g., clinical/at-risk to normative levels) in behavioral and quality of life domains were also noted.Conclusion: Epilepsy Journey appears to contribute to changes in emotional and behavioral functioning and HRQOL in adolescents with epilepsy. Given the proof of concept trial format of this study, an important future direction is to conduct a randomized controlled trial with a larger, generalizable cohort of adolescents with epilepsy. pubtype: Academic Journal doctype: research tables/charts randomized controlled trial Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
|---|