ODM Clinical Data Generator: Syntactically Correct Clinical Data Based on Metadata Definition.

The Operational Data Model (ODM) is a data standard for interchanging clinical trial data. ODM contains the metadata definition of a study, i.e., case report forms, as well as the clinical data, i.e., the answers of the participants. The portal of medical data models is an infrastructure for creatio...

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Publicado en:Studies in Health Technology & Informatics no. 278; pp. 35 - 41
Autores principales: BRIX, Tobias J., BECKER, Ludger, HARBICH, Timm, OEHM, Johannes, FECHNER, Maximilian, DUGAS, Martin, STORCK, Michael
Formato: pictorial research tables/charts Journal Article
Publicado: Sage Publications Inc. 2021
Acceso en línea:Ver este registro en EBSCOhost
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      jtl: Studies in Health Technology & Informatics
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      dt: 2021
      iid: 278
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      pub: Sage Publications Inc.
      place: Thousand Oaks, California
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        atl: ODM Clinical Data Generator: Syntactically Correct Clinical Data Based on Metadata Definition.
      aug:
        au:
          BRIX, Tobias J.
          BECKER, Ludger
          HARBICH, Timm
          OEHM, Johannes
          FECHNER, Maximilian
          DUGAS, Martin
          STORCK, Michael
        affil: Institute of Medical Informatics, University of Münster, Germany
      sug:
        subj:
          Metadata
          Electronic Health Records
          Health Information Systems
          Data Security
          Data Analysis, Statistical
          Data Collection
          Privacy and Confidentiality
      ab: The Operational Data Model (ODM) is a data standard for interchanging clinical trial data. ODM contains the metadata definition of a study, i.e., case report forms, as well as the clinical data, i.e., the answers of the participants. The portal of medical data models is an infrastructure for creation, exchange, and analysis of medical metadata models. There, over 23000 metadata definitions can be downloaded in ODM format. Due to data protection law and privacy issues, clinical data is not contained in these files. Access to exemplary clinical test data in the desired metadata definition is necessary in order to evaluate systems claiming to support ODM or to evaluate if a planned statistical analysis can be performed with the defined data types. In this work, we present a web application, which generates syntactically correct clinical data in ODM format based on an uploaded ODM metadata definition. Data types and range constraints are taken into account. Data for up to one million participants can be generated in a reasonable amount of time. Thus, in combination with the portal of medical data models, a large number of ODM files including metadata definition and clinical data can be provided for testing of any ODM supporting system. The current version of the application can be tested at https://cdgen.uni-muenster.de and source code is available, under MIT license, at https://imigitlab.uni-muenster.de/published/odm-clinical-data-generator.
      pubtype: Academic Journal
      doctype:
        pictorial
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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