Feeling controlled or being in control? Apps for self-management among older people with neurological disability.
The aim of this paper was to describe how people living with a neurological disability such as multiple sclerosis, Parkinson's disease and stroke reason regarding using apps to facilitate self-management in everyday life. A qualitative research approach with a focus group methodology was used. The s...
| Publicado en: | Disability & Rehabilitation: Assistive Technology Vol. 16; no. 6; pp. 603 - 609 |
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| Autores principales: | , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Aug2021
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=151380300&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 151380300 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 17483107 1X04 jtl: Disability & Rehabilitation: Assistive Technology issn: 17483107 maglogo: Y pubinfo: dt: Aug2021 vid: 16 iid: 6 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 151380300 151380300 151380300 10.1080/17483107.2019.1685017 151380300 ppf: 603 ppct: 6 formats: fmt: @attributes: type: P tig: atl: Feeling controlled or being in control? Apps for self-management among older people with neurological disability. aug: au: Winberg, C. Kylberg, M. Pettersson, C. Harnett, T. Hedvall, P.-O. Mattsson, T. Månsson Lexell, E. affil: Department of Health Sciences, Lund University, Lund, Sweden sug: subj: Self-Management In Middle Age Self-Management In Old Age Mobile Applications Utilization Nervous System Diseases Rehabilitation Multiple Sclerosis Rehabilitation Parkinson Disease Rehabilitation Stroke Rehabilitation Human Male Female Middle Age Aged Aged, 80 and Over Persons with Disabilities Qualitative Studies Focus Groups Thematic Analysis Health Behavior Life Style Changes Communication Professional-Patient Relations Funding Source Middle Aged: 45-64 years Aged: 65+ years Aged, 80 & over Male Female ab: The aim of this paper was to describe how people living with a neurological disability such as multiple sclerosis, Parkinson's disease and stroke reason regarding using apps to facilitate self-management in everyday life. A qualitative research approach with a focus group methodology was used. The sample comprised 16 participants, 11 men and 5 women, with an average age of 64 years (ranging from 51–80 years). Six participants were diagnosed with multiple sclerosis, six with Parkinson's disease and four with stroke. Data were analyzed using thematic analysis, which is a method for identifying, analyzing and reporting patterns. The results formed two themes. The first theme "using apps to have control of my health" comprises two subthemes; "monitor and take responsibility for a healthy lifestyle" and "compensate to facilitate everyday life". The second theme "using the app as a tool and means for communication" also comprised two subthemes; "dare to trust the app" and "feeling safe when sharing information with health care professionals". The use of apps put increased responsibility on the person and had the possibility to make them more involved in their own care. The use of an app can facilitate a healthy lifestyle and help to monitor disease-specific symptoms. In order to be able to use apps for communication with the health care sector legislation and safety issues need to be considered. Apps can be used for self-management if they are safe and can be trusted. People with neurological disabilities want to be involved in their healthcare and needs to be addressed by health care professionals. The use of apps grasp over a wide variety of areas this is something that may be considered in health care and something that can be addressed by interdisciplinary approaches. Ordinary health-oriented apps and disease-specific apps were used differently and for different purposes. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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