Community research collaboration to develop a promotores-based hereditary breast cancer education program for Spanish-speaking Latinas.

Breast cancer (BC) is the most common cancer in Latinas and the leading cause of cancer death. Latinas tend to be diagnosed at later stages, receive poorer quality care and have a higher risk of mortality than non-Latina White (NLW) women. Among women with a genetic predisposition to hereditary BC,...

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Published in:Health Education Research Vol. 36; no. 3; pp. 319 - 337
Main Authors: Almeida, Rebeca, Lopez-Macha, Alejandra, Dugatkin, Tania, Joseph, Galen, Duron, Ysabel, Mendoza, Alejandra Hurtado de, Graves, Kristi D., Fejerman, Laura
Format: research tables/charts Journal Article
Published: Oxford University Press / USA Jun2021
Online Access:View this record in EBSCOhost
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      dt: Jun2021
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        atl: Community research collaboration to develop a promotores-based hereditary breast cancer education program for Spanish-speaking Latinas.
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          Almeida, Rebeca
          Lopez-Macha, Alejandra
          Dugatkin, Tania
          Joseph, Galen
          Duron, Ysabel
          Mendoza, Alejandra Hurtado de
          Graves, Kristi D.
          Fejerman, Laura
        affil: University of California , San Francisco, CA, USA
      sug:
        subj:
          Breast Neoplasms Familial and Genetic
          Breast Neoplasms Education
          Health Promotion Methods
          Community Health Services
          Health Education
          Collaboration
          Program Development
          Hispanic Americans
          Human
          Female
          Adult
          Middle Age
          Multimethod Studies
          Quantitative Studies
          Surveys
          Conceptual Framework
          Focus Groups
          Health Knowledge
          Genetic Counseling
          Curriculum Development
          Cancer Screening Education
          Confidence
          Consent (Research)
          Program Evaluation
          Genetic Screening
          Feedback
          Statistical Significance
          Chi Square Test
          T-Tests
          Content Analysis
          Descriptive Statistics
          Funding Source
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Female
      ab: Breast cancer (BC) is the most common cancer in Latinas and the leading cause of cancer death. Latinas tend to be diagnosed at later stages, receive poorer quality care and have a higher risk of mortality than non-Latina White (NLW) women. Among women with a genetic predisposition to hereditary BC, genetic counseling can be beneficial. Latinas participate in genetic counseling at lower rates than NLW women. The goal of this study was to develop comprehensive, culturally appropriate materials for community health educators (promotores)-led hereditary BC education program for Spanish-speaking Latinas. We developed the curriculum through feedback from 7 focus groups, with a total of 68 participants (35 promotores and 33 community members). We used a mixed-methods approach that relied on quantitative analysis of survey questions and qualitative content analysis of the focus groups transcripts. Pre and post promotores' training survey responses suggested improvement in the promotores' cancer-related knowledge. Themes that emerged from the qualitative analyses were (i) barriers to health education and/or care; (ii) importance of educating the Latino community about BC and genetics and (iii) role of the promotores. Future research will further evaluate the impact of the program in promotores' knowledge and community members' screening behaviors.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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