Patient‐reported outcome measures (PROMs): A review of generic and condition‐specific measures and a discussion of trends and issues.

Background: Patient‐reported outcome measures (PROMs) are questionnaires that collect health outcomes directly from the people who experience them. This review critically synthesizes information on generic and selected condition‐specific PROMs to describe trends and contemporary issues regarding the...

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Publicado en:Health Expectations Vol. 24; no. 4; pp. 1015 - 1025
Autores principales: Churruca, Kate, Pomare, Chiara, Ellis, Louise A., Long, Janet C., Henderson, Suzanna B., Murphy, Lisa E. D., Leahy, Christopher J., Braithwaite, Jeffrey
Formato: research systematic review tables/charts Journal Article
Publicado: Wiley-Blackwell Aug2021
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Aug2021
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        atl: Patient‐reported outcome measures (PROMs): A review of generic and condition‐specific measures and a discussion of trends and issues.
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        au:
          Churruca, Kate
          Pomare, Chiara
          Ellis, Louise A.
          Long, Janet C.
          Henderson, Suzanna B.
          Murphy, Lisa E. D.
          Leahy, Christopher J.
          Braithwaite, Jeffrey
        affil: Centre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Macquarie University, Sydney NSW,, Australia
      sug:
        subj:
          Patient-Reported Outcomes Trends
          Instrument Validation
          Instrument Construction
          Patient Safety
          Human
          Systematic Review
          Questionnaires
          Gray Literature
          Web Search Engines
          Medline
          Embase
          Psycinfo
          CINAHL Database
          Data Analysis Software
          Funding Source
      ab: Background: Patient‐reported outcome measures (PROMs) are questionnaires that collect health outcomes directly from the people who experience them. This review critically synthesizes information on generic and selected condition‐specific PROMs to describe trends and contemporary issues regarding their development, validation and application. Methods: We reviewed academic and grey literature on validated PROMs by searching databases, prominent websites, Google Scholar and Google Search. The identification of condition‐specific PROMs was limited to common conditions and those with a high burden of disease (eg cancers, cardiovascular disorders). Trends and contemporary issues in the development, validation and application of PROMs were critically evaluated. Results: The search yielded 315 generic and condition‐specific PROMs. The largest numbers of measures were identified for generic PROMs, musculoskeletal conditions and cancers. The earliest published PROMs were in mental health‐related conditions. The number of PROMs grew substantially between 1980s and 2000s but slowed more recently. The number of publications discussing PROMs continues to increase. Issues identified include the use of computer‐adaptive testing and increasing concerns about the appropriateness of using PROMs developed and validated for specific purposes (eg research) for other reasons (eg clinical decision making). Conclusions: The term PROM is a relatively new designation for a range of measures that have existed since at least the 1960s. Although literature on PROMs continues to expand, challenges remain in selecting reliable and valid tools that are fit‐for‐purpose from the many existing instruments. Patient or public contribution: Consumers were not directly involved in this review; however, its outcome will be used in programmes that engage and partner with consumers.
      pubtype: Academic Journal
      doctype:
        research
        systematic review
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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