Caregivers' perceptions and experience of caring for persons with Down syndrome in Kuwait: a qualitative study.
Aim and Objective: This study aimed to explore how caregivers of persons with Down syndrome (DS) believe caring had an impact on their own lives. A secondary objective was to understand their experience of seeking educational, social, and health care services for the persons with DS. Methods: This q...
| Publicado en: | International Journal of Developmental Disabilities Vol. 67; no. 5; pp. 381 - 391 |
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| Autores principales: | , , , , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Oct2021
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=152538704&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 152538704 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 20473869 F2SP jtl: International Journal of Developmental Disabilities issn: 20473869 maglogo: N pubinfo: dt: Oct2021 vid: 67 iid: 5 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 152538704 149771923 152538704 152538704 10.1080/20473869.2021.1910780 152538704 ppf: 381 ppct: 10 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Caregivers' perceptions and experience of caring for persons with Down syndrome in Kuwait: a qualitative study. aug: au: AlShatti, Amna AlKandari, Dana AlMutairi, Hessa AlEbrahim, Dalal AlMutairi, Abdullah AlAnsari, Danah Abduljaleel, Lulwa AlEnzi, Hassna AlFoudari, Latifa AlShaib, Hamad AlAzmi, Khalid Ahmed, Jamil affil: Department of Family and Community Medicine, College of Medicine and Medical Sciences, Arabian Gulf University, Manama, Bahrain sug: subj: Caregiver Attitudes Caregivers Down Syndrome Rehabilitation Patient Care Patient Education Health Care Delivery Caregiver Support Caregiver Burden Psychosocial Factors Human Kuwait Qualitative Studies Exploratory Research Mothers Socioeconomic Factors Caregiver Burden Counseling Coping ab: Aim and Objective: This study aimed to explore how caregivers of persons with Down syndrome (DS) believe caring had an impact on their own lives. A secondary objective was to understand their experience of seeking educational, social, and health care services for the persons with DS. Methods: This qualitative exploratory study was conducted with 21 caregivers of persons with DS in Kuwait. Results: Caregivers struggled to accept the diagnosis initially that led them to search for answers to many of their concerns about raising a person with DS. For the caregivers, who mostly comprised of mothers, dealing with health conditions that persons with DS suffered from was initially difficult. Caring for these individuals led to heavy impact upon their caregivers' own lives who took extraordinary efforts to cope with the burden. Seeking quality education for the persons with DS and participation in social activities was also challenging, and the caregivers believed that better services, facilities, and benefits for the families of persons with DS may help them better cope with the socioeconomic and psychological burden. Conclusions: Improving the availability of specialized services, the delivery of guidance and counselling, and social integration may help overcome challenges of raising a person with Down Syndrome. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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