Taming Time: Configuring Cancer Patients as Research Subjects.
This article explores how incurable cancer patients in the affluent Danish welfare state are recruited to clinical trials. We show that patients' impending death constitutes their potential for being configured as research subjects. To produce valuable data, patients who enroll in trials and health...
| Publicado en: | Medical Anthropology Quarterly Vol. 35; no. 3; pp. 386 - 402 |
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| Autores principales: | , |
| Formato: | Artículo |
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Wiley-Blackwell
Sep2021
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=152539607&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 152539607 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 07455194 GFS jtl: Medical Anthropology Quarterly issn: 07455194 maglogo: Y pubinfo: dt: Sep2021 vid: 35 iid: 3 pid: 480 pub: Wiley-Blackwell artinfo: ui: 152539607 10.1111/maq.12647 ppf: 386 ppct: 16 formats: fmt: @attributes: type: P size: 185KB tig: atl: Taming Time: Configuring Cancer Patients as Research Subjects. aug: au: Bogicevic, Ivana Svendsen, Mette N. affil: Department of Public Health, University of Copenhagen su: Medical personnel Clinical trials Terminally ill Cancer patients Cancer research sug: subj: Medical personnel Clinical trials Terminally ill Research and Development in the Physical, Engineering, and Life Sciences (except Biotechnology) Cancer patients Cancer research keyword: cancer clinical trials human subjects research ethics temporality cancer clinical trials human subjects research ethics temporality ab: This article explores how incurable cancer patients in the affluent Danish welfare state are recruited to clinical trials. We show that patients' impending death constitutes their potential for being configured as research subjects. To produce valuable data, patients who enroll in trials and health care professionals must engage in daily "time practices" that prolong the threshold between life and death. When death becomes inevitable, the limit of configuring dying cancer patients as research subjects is reached. Navigating this temporal logic, health care professionals balance the boundary between patients' instrumental worth as research subjects and their intrinsic worth as dying cancer patients. Whereas previous studies have critically uncovered how clinical trials operate at socioeconomic margins, we point to the ways in which clinical trials operate through temporal margins. We argue that clinical trials are dependent on configuring marginal societal spaces and marginal bodies from which to produce knowledge. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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