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Extending Research Protections to Tribal Communities.

The history of research in American Indian/Alaska Native (AI/AN) communities has been marked by unethical practices, resulting in mistrust and reluctance to participate in research. Harms are not limited to individual persons—tribal communities experience harmful misrepresentation and generalization...

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Published in:American Journal of Bioethics Vol. 21; no. 10; pp. 5 - 13
Main Authors: Saunkeah, Bobby, Beans, Julie A., Peercy, Michael T., Hiratsuka, Vanessa Y., Spicer, Paul
Format: Journal Article
Published: Taylor & Francis Ltd Oct2021
Online Access:View this record in EBSCOhost
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      dt: Oct2021
      vid: 21
      iid: 10
      pid: 377
      pub: Taylor & Francis Ltd
      place: Philadelphia, Pennsylvania
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        10.1080/15265161.2020.1865477
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        atl: Extending Research Protections to Tribal Communities.
      aug:
        au:
          Saunkeah, Bobby
          Beans, Julie A.
          Peercy, Michael T.
          Hiratsuka, Vanessa Y.
          Spicer, Paul
        affil: Chickasaw Nation Department of Health
      sug:
        subj:
          Research Ethics
          Protection of Human Subjects
          Alaska Natives
          Native Americans
          Trust
          Culture
          Respect
          Autonomy
          Harm Reduction
      ab: The history of research in American Indian/Alaska Native (AI/AN) communities has been marked by unethical practices, resulting in mistrust and reluctance to participate in research. Harms are not limited to individual persons—tribal communities experience harmful misrepresentation and generalizations disrespectful of AI/AN groups' heritage, cultures, and beliefs. The Belmont Report's research ethics principles are applied primarily to protect individual research participants. The principles of sovereignty and solidarity are argued to be important concepts in extending Belmont's research protections to tribal communities. Sovereignty, an expression of respect for autonomy at a group level, is the basis for tribal self-determination. The principle of solidarity provides an ethical underpinning for tribes' obligations to protect community interests and culture. Extension of Belmont through these principles should serve to minimize harms to AI/AN groups in research.
      pubtype: Academic Journal
      doctype: Journal Article
      ougenre: Article
    language: English
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