Systematic review of research focused on pregnant and postpartum women living with HIV: A relational ethics perspective.

Historically, maternal HIV research has focused on prevention of mother‐to‐child transmission and child outcomes, with little focus on the health outcomes of mothers. Over the course of the HIV epidemic, the approach to including pregnant women in research has shifted. The current landscape lends it...

Descripción completa

Detalles Bibliográficos
Publicado en:Bioethics Vol. 35; no. 8; pp. 829 - 839
Autores principales: Weber, Alison Z., Harrison, Abigail, Pellowski, Jennifer A.
Formato: Artículo
Publicado: Wiley-Blackwell Oct2021
Materias:
Acceso en línea:Ver este registro en EBSCOhost
fields @attributes:
  recordID: 1
pdfLink:
plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=152761708&site=ehost-live
header:
  @attributes:
    shortDbName: ssf
    uiTerm: 152761708
    longDbName: Social Sciences Full Text (H.W. Wilson)
    uiTag: AN
  controlInfo:
    bkinfo:
    jinfo:
      jid:
        02699702
        6PJ
      jtl: Bioethics
      issn: 02699702
      maglogo: Y
    pubinfo:
      dt: Oct2021
      vid: 35
      iid: 8
      pid: 480
      pub: Wiley-Blackwell
    artinfo:
      ui:
        152761708
        10.1111/bioe.12917
      ppf: 829
      ppct: 10
      formats:
      tig:
        atl: Systematic review of research focused on pregnant and postpartum women living with HIV: A relational ethics perspective.
      aug:
        au:
          Weber, Alison Z.
          Harrison, Abigail
          Pellowski, Jennifer A.
        affil:
          Department of Behavioral and Social Sciences, Brown University School of Public Health, Providence RI
          International Health Institute, Brown University School of Public Health, Providence RI
      su:
        Health policy
        Pregnancy & psychology
        Human research subjects
        Patient participation
        Psychology of mothers
        Government regulation
        Public health
        Research ethics
        Patient compliance
        Needs assessment
        Medical research
        Clinical drug trials
        HIV infections
        Systematic reviews
        Antiretroviral agents
        Puerperium
        Psychology of HIV-positive persons
      sug:
        subj:
          Health policy
          Pregnancy & psychology
          Human research subjects
          Patient participation
          Psychology of mothers
          Government regulation
          Public health
          Research ethics
          Patient compliance
          Needs assessment
          Medical research
          Pharmaceutical and medicine manufacturing
          Administration of Public Health Programs
          Research and Development in the Physical, Engineering, and Life Sciences (except Biotechnology)
          Health and Welfare Funds
          Clinical drug trials
          HIV infections
          Systematic reviews
          Antiretroviral agents
          Puerperium
          Psychology of HIV-positive persons
      keyword:
        adherence
        empirical ethics
        HIV
        maternal health
        retention
        adherence
        empirical ethics
        HIV
        maternal health
        retention
      ab: Historically, maternal HIV research has focused on prevention of mother‐to‐child transmission and child outcomes, with little focus on the health outcomes of mothers. Over the course of the HIV epidemic, the approach to including pregnant women in research has shifted. The current landscape lends itself to reviewing the public health ethics of this research. This systematic review aims to identify ethical barriers and considerations for including pregnant and postpartum women living with HIV in treatment adherence and retention research. We completed a systematic literature review following PRISMA guidelines with analysis using a relational ethics perspective. The included studies (n = 7) identified ethical barriers related to (a) women research participants as individuals, (b) partner and family dynamics, (c) community perspectives on research design and conduct, and (d) policy and regulatory implications. These broader contextual factors will yield research responsive to, and respectful of, the needs of pregnant and postpartum women living with HIV. While current regulatory and policy environments may be slow to change, actions can be taken now to foster enabling environments for research. We suggest that a relational approach to public health ethics can best support the needs of pregnant and postpartum women living with HIV; acknowledging this population as systematically disadvantaged and inseparable from their communities will best support the health of this population.
      pubtype: Academic Journal
      doctype: Article
      src: R
    language: English
    refInfo:
    copyright:
      @attributes:
        flag: N
    holdings:
      @attributes:
        islocal: N