Ten years of a Systemic Sclerosis Clinic in a Tertiary Referral Centre -- insights and future directions.
Systemic sclerosis (SSc) is an uncommon condition, with a wide range of manifestations, characterized by specific antibody production, vasculopathy and fibrosis of the skin and other internal organs. It is a complex disease, which is estimated to be rare in Portugal, although specific incidence data...
| Publicado en: | Acta Reumatológica Portuguesa Vol. 46; no. 3; pp. 257 - 266 |
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| Autores principales: | , , , , , |
| Formato: | Artículo |
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Sociedade Portuguesa de Reumatologia
Jul-Sep2021
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=lth&AN=152790330&site=ehost-live header: @attributes: shortDbName: lth uiTerm: 152790330 longDbName: MedicLatina uiTag: AN controlInfo: bkinfo: jinfo: jid: 0303464X 4Z1D jtl: Acta Reumatológica Portuguesa issn: 0303464X maglogo: N pubinfo: dt: Jul-Sep2021 vid: 46 iid: 3 pid: 38819 pub: Sociedade Portuguesa de Reumatologia artinfo: ui: 152790330 ppf: 257 ppct: 9 formats: fmt: @attributes: type: P size: 516KB tig: atl: Ten years of a Systemic Sclerosis Clinic in a Tertiary Referral Centre -- insights and future directions. aug: au: Martins, P. Dourado, E. Cordeiro, I. Romão, V. C. Fonseca, J. E. Resende, C. affil: Serviço De Reumatologia E Doenças Ósseas Metabólicas, Hospital De Santa Maria, Centro Hospitalar Universitário Lisboa Norte, Centro Académico De Medicina De Lisboa, Portugal Unidade de Investigação Em Reumatologia, Instituto De Medicina Molecular, Faculdade de Medicina, Universidade De Lisboa, Centro Académico de Medicina De Lisboa, Portugal European Reference network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERn-ReCOnnET) su: Systemic scleroderma Scleroderma (Disease) Tertiary care Medical protocols Fibrosis Portugal sug: subj: Portugal Systemic scleroderma Scleroderma (Disease) Tertiary care Medical protocols Fibrosis keyword: Patient Care Reuma.pt Scleroderma Systemic Sclerosis Tertiary Care ab: Systemic sclerosis (SSc) is an uncommon condition, with a wide range of manifestations, characterized by specific antibody production, vasculopathy and fibrosis of the skin and other internal organs. It is a complex disease, which is estimated to be rare in Portugal, although specific incidence data are missing. The aetiology of SSc remains unknown, but is likely to be multifactorial, involving genetic and environmental aspects. Its management is challenging and often requires a multidisciplinary approach. In 2011, we established a dedicated outpatient clinic for patients with SSc. Clinical data of every patient with a confirmed diagnosis of SSc is prospectively registered in Reuma.pt/SSc. In this manuscript, we aim to describe the general functioning of our SSc outpatient clinic, and to characterise the population of patients with SSc who are followed herein. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: Y custom: Copyright of Acta Reumatológica Portuguesa is the property of Sociedade Portuguesa de Reumatologia and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. item: Acta Reumatológica Portuguesa holder: Sociedade Portuguesa de Reumatologia dt: @attributes: year: 2021 holdings: @attributes: islocal: N |
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