A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children.
In order to present a greater understanding to parental experiences of supporting their child with autism to access healthcare services, a systematic review of qualitative research was undertaken, addressing the review question: 'How do parents of children with autism describe their experiences of u...
| Published in: | Health & Social Care in the Community Vol. 29; no. 6; pp. 1668 - 1683 |
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| Main Authors: | , , , , , |
| Format: | research systematic review tables/charts Journal Article |
| Published: |
Wiley-Blackwell
Nov2021
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=152970275&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 152970275 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09660410 EVX jtl: Health & Social Care in the Community issn: 09660410 maglogo: Y pubinfo: dt: Nov2021 vid: 29 iid: 6 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 152970275 150995012 152970275 152970275 10.1111/hsc.13369 152970275 ppf: 1668 ppct: 15 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children. aug: au: Boshoff, Kobie Bowen‐Salter, Holly Gibbs, Deanna Phillips, Rebecca L. Porter, Lisa Wiles, Louise affil: International Centre for Allied Health Evidence, Allied Health and Human Performance, University of South Australia, Adelaide SA,, Australia sug: subj: Autism Spectrum Disorder Parents of Children with Disabilities Parental Attitudes Evaluation Attitude to Health Evaluation Health Services Accessibility Child Health Services Human Systematic Review Meta Synthesis Medline Checklists Embase Psycinfo ERIC Database Cochrane Library Thematic Analysis Professional-Patient Relations Professional-Family Relations ab: In order to present a greater understanding to parental experiences of supporting their child with autism to access healthcare services, a systematic review of qualitative research was undertaken, addressing the review question: 'How do parents of children with autism describe their experiences of utilising routine healthcare services?'. After a systematic search and selection process, 12 studies were identified and appraised independently by paired reviewers using an adapted version of the Critical Appraisal Skills Programme (CASP) tool. Data were synthesised by two reviewers in line with the Joanna Briggs Approach for meta‐aggregation. The 12 studies included in this review (spanning 2012–2020), represented the voices of 240 parents. The synthesis resulted in the following synthesised finding (based on four categories that emerged from the original studies' themes): parents report challenges in accessing and use of mainstream health services, for their child with autism, due to not having a voice, inadequate communication and lack of understanding from health service providers. This review raises our awareness of parents' experiences of healthcare services and will assist healthcare practitioners to reconsider their own communication style, understanding and approach with children with autism and their families. From these findings, we recommend that healthcare practitioners more readily incorporate parents' contributory expertise into healthcare visits. These recommendations will help facilitate effective, supportive and positive healthcare experiences for all involved. pubtype: Academic Journal doctype: research systematic review tables/charts meta synthesis Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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