Adapting a Patient-Reported Outcome Bookmarking Task to be Accessible to Adults With Cognitive and Language Disorders.
Background: Patient-reported outcome (PRO) measures produce scores that do not always have obvious clinical meaning. The PRO-bookmarking procedure is a new and promising way to make PRO measures more meaningful and interpretable. However, the materials and procedures of the task may benefit from ada...
| Publicado en: | Journal of Speech, Language & Hearing Research Vol. 64; no. 11; pp. 4403 - 4413 |
|---|---|
| Autores principales: | , , , , , , , |
| Formato: | Artículo |
| Publicado: |
American Speech-Language-Hearing Association
Nov2021
|
| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=153519507&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 153519507 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 10924388 1SM jtl: Journal of Speech, Language & Hearing Research issn: 10924388 maglogo: N pubinfo: dt: Nov2021 vid: 64 iid: 11 pid: 42 pub: American Speech-Language-Hearing Association artinfo: ui: 153519507 10.1044/2021_JSLHR-21-00071 ppf: 4403 ppct: 10 formats: fmt: @attributes: type: P size: 846KB tig: atl: Adapting a Patient-Reported Outcome Bookmarking Task to be Accessible to Adults With Cognitive and Language Disorders. aug: au: Cohen, Matthew L. Harnish, Stacy M. Lanzi, Alyssa M. Brello, Jennifer Victorson, David Kisala, Pamela A. Nandakumar, Ratna Tulsky, David S. affil: Department of Communication Sciences and Disorders, University of Delaware, Newark Center for Health Assessment Research and Translation, University of Delaware, Newark Department of Speech and Hearing Science, The Ohio State University, Columbus Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL School of Education, University of Delaware, Newark Department of Physical Therapy, University of Delaware, Newark su: Adults Language disorders Focus groups Patient reported outcome measures Cognition disorders Aphasic persons Aphasia Stakeholder analysis Health outcome assessment Research funding sug: subj: Adults Language disorders Focus groups Patient reported outcome measures Cognition disorders Aphasic persons Aphasia Stakeholder analysis Health outcome assessment Research funding ab: Background: Patient-reported outcome (PRO) measures produce scores that do not always have obvious clinical meaning. The PRO-bookmarking procedure is a new and promising way to make PRO measures more meaningful and interpretable. However, the materials and procedures of the task may benefit from adaptations to be more accessible to individuals with cognitive and language disorders. Aims: This study aims to provide an overview of the iterative refinement process used to modify the materials and procedures of the PRO-bookmarking task so that they are more accessible to adults with acquired cognitive and language impairments. Method and Procedures: Our team of health psychologists, neuropsychologists, and speech-language pathologists (SLPs) conducted two focus groups with SLPs and care partners of people with aphasia using the same PRObookmarking materials and procedures as previous reports. These PRO-bookmarking materials and procedures were then refined iteratively based on discussion with those who participated in focus groups and among the research team, and three more times in the course of 16 additional focus groups of different stakeholders: people with Parkinson's disease, aphasia, or traumatic brain injury; care partners of people with those conditions; and SLPs who have experience with those, and other adult-acquired conditions. Outcomes and Results: The PRO-bookmarking materials and procedures underwent four iterations to make them clearer, simpler, and more accessible. For example, the materials included more structured text and graphic supports where appropriate and the procedures were clustered into smaller discrete tasks and displayed graphically when possible and appropriate. Conclusions: PRO-bookmarking materials and procedures were made simpler and more structured to increase their accessibility to adults with cognitive and language impairments. In fact, these adaptations made the tasks simpler and clearer for all types of stakeholders. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
|---|