A Qualitative Study of Family Caregiver Perceptions of High-Quality Care at a Pediatric Complex Care Center.
Pediatric complex care centers are an increasingly common approach to address the needs of children with medical complexity (CMC). We sought to better understand CMC caregivers' perceptions of what constitutes high-quality care at a complex care center. We conducted a cross-sectional qualitative stu...
| Publicado en: | Academic Pediatrics Vol. 22; no. 1; pp. 107 - 116 |
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| Autores principales: | , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Elsevier B.V.
Jan2022
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=154215815&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 154215815 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 18762859 8NBK jtl: Academic Pediatrics issn: 18762859 maglogo: N pubinfo: dt: Jan2022 vid: 22 iid: 1 pid: 467 pub: Elsevier B.V. place: New York, New York artinfo: ui: 154215815 154215815 154215815 10.1016/j.acap.2021.05.012 154215815 ppf: 107 ppct: 9 formats: fmt: @attributes: type: P tig: atl: A Qualitative Study of Family Caregiver Perceptions of High-Quality Care at a Pediatric Complex Care Center. aug: au: Yu, Justin A. Cook, Stacey Imming, Christina Knezevich, Liana Ray, Kristin Houtrow, Amy Rosenberg, Abby R. Schenker, Yael affil: Department of Pediatrics, Division of Pediatric Hospital Medicine, University of Pittsburgh School of Medicine (JA Yu and C Imming), Pittsburgh, Pa sug: subj: Caregiver Attitudes Evaluation Quality of Health Care Pediatric Care Family Attitudes Evaluation Human Qualitative Studies Cross Sectional Studies Semi-Structured Interview Life Experiences Thematic Analysis Descriptive Statistics Female Male Outpatient Service Female Male ab: Pediatric complex care centers are an increasingly common approach to address the needs of children with medical complexity (CMC). We sought to better understand CMC caregivers' perceptions of what constitutes high-quality care at a complex care center. We conducted a cross-sectional qualitative study of family caregivers of CMC receiving care at a pediatric complex care center situated within a tertiary-care children's hospital. In-depth, semistructured interviews focused on caregivers' general experiences at the clinic, positive and negative experiences related to core components of the pediatric medical home, and recommendations for improvements. We thematically analyzed transcripts through a mixed inductive and deductive approach, using constant comparative methodology, with the pediatric medical home model as an organizing framework. We conducted interviews with 20 participants (18 [90%] biological parents; 19 [95%] female; mean age 39 years) in outpatient settings. Caregivers described 2 major themes: 1) the value of having a clinician "quarterback" who is in-charge of their child's care and caregivers' go-to for questions and concerns, and 2) wanting clinicians who are personally invested in and willing to "go above and beyond" for their child. Participants discussed how and which components of the medical home model enable CMC clinicians to meet these needs. Family caregivers of CMC want clinicians who take responsibility for managing their child's overall care and demonstrate personal commitment to ensuring their child's well-being. Multiple aspects of the medical home framework, rather than care coordination alone, help meet caregivers' perceptions of high-quality complex care. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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