Parents' experiences of children's health care for hypermobile Ehlers–Danlos syndrome and hypermobility spectrum disorders.
Hypermobile Ehlers–Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD) are underdiagnosed hereditary connective tissue disorders requiring health care across specialties. Using mixed methods, we explored how parents have experienced children's health care for hEDS/HSD. Surveyed parents...
| Publicado en: | Children's Health Care Vol. 51; no. 1; pp. 37 - 62 |
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| Autores principales: | , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Jan-Mar 2022
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| Acceso en línea: | Ver este registro en EBSCOhost |