How is Clinical Trial Reimbursement Money Spent? South African Trial Participants' Reported Reimbursement Spending Patterns and Perceptions of Appropriate Reimbursement Amounts.

Reimbursement of participants in clinical trials is extensively debated. Guidance recommends that compensation should reflect time, inconvenience and reimbursement of expenses. This study describes how participants spend their reimbursement and perceptions of appropriate reimbursement amounts. This...

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Publicado en:AIDS & Behavior Vol. 26; no. 2; pp. 604 - 613
Autores principales: Milford, Cecilia, Cavanagh, Tammany, Ralfe, Yolandie, Maphumulo, Virginia, Beksinska, Mags, Smit, Jennifer
Formato: research tables/charts Journal Article
Publicado: Springer Nature Feb2022
Acceso en línea:Ver este registro en EBSCOhost
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        atl: How is Clinical Trial Reimbursement Money Spent? South African Trial Participants' Reported Reimbursement Spending Patterns and Perceptions of Appropriate Reimbursement Amounts.
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          Milford, Cecilia
          Cavanagh, Tammany
          Ralfe, Yolandie
          Maphumulo, Virginia
          Beksinska, Mags
          Smit, Jennifer
        affil: MRU (MatCH Research Unit), Department of Obstetrics and Gynaecology, Faculty of Health Sciences, University of the Witwatersrand, 40 Dr AB Xuma Street, Commercial City Building, 4001, Durban, South Africa
      sug:
        subj:
          Clinical Trials
          Reimbursement Mechanisms
          Research Subjects Psychosocial Factors
          Human
          Multimethod Studies
          Questionnaires
          Focus Groups
          South Africa
      ab: Reimbursement of participants in clinical trials is extensively debated. Guidance recommends that compensation should reflect time, inconvenience and reimbursement of expenses. This study describes how participants spend their reimbursement and perceptions of appropriate reimbursement amounts. This was a sub-study of the evidence for contraceptive options and HIV outcomes (ECHO) trial. Participants were from two sites in KwaZulu-Natal, South Africa. A mixed methods approach was used. 500 participants completed a questionnaire, and 32 participated in one of four focus group discussions (FGD). The majority (81%) used reimbursement for transport to the research site, followed by toiletry purchases (64%). Many described how reimbursement supplemented income, used to cover basic living costs. Some used money to buy luxury items and takeaway foods. The ideal reimbursement amount per visit ranged: ZAR150-ZAR340 (US$10–24). Reimbursement spending and perceptions are in line with local guidance. Reimbursement should consider risk minimization together with ensuring informed, voluntary decision making.
      pubtype: Academic Journal
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        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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